FeaturedActive todayDNA markers for AMDI recently got my DNA analyzed to see what other surprises might be lurking in my future. I only have 3 markers for genetic issues and all 3 are for...Reactions0reactionsComments11 repliesProgression
FeaturedIzervay injections for dry AMDI received 2 Izervay injections this year and my vision got very blurry. I am very upset after reading the trial about 10 % had that happen. I stopped the...Reactions0reactionsComments56 repliesDry AMD
Active todayMyopic MD is 4% of the population of MD people. Does anyone else feel in the minority?There is such a small number of us with myopic macular degeneration that I feel no one discusses it. There’s no research being done. No clinical trials nothing at all...Reactions0reactionsComments16 repliesCoping
Active todayWhat symptoms have you been experiencing lately? A common symptom of macular degeneration is light sensitivity. Do you experience this or any other symptoms (e.g. colors losing their vibrancy, blurred lines, central scotoma)? Share with our community....Reactions0reactionsComments31 repliesSymptoms
Active yesterdayvision changing for worse.I have dry eye macular for several years, seems my vision is getting worse. I have new eye prescription glasses but doesnt help. Does anyone else have t his problem?...Reactions0reactionsComments2 repliesSymptomsCopingDry AMD
Active yesterdayIf you have Charles Bonnet Syndrome what were your earliest symptoms?I was diagnosed with Charles Bonnet Syndrome (CBS)yesterday. If I had not ran across a Reddit thread on CBS I would not have known to ask my doctor about it...Reactions0reactionsComments23 repliesDiagnosisProgressionSymptoms
Active 4 days agoPhotodynamic therapyI have to have photodynamic therapy on my eye for wet macular degeneration. Can anyone tell me what that is like or anything else about the procedure? Thank you...Reactions0reactionsComments3 replies
Active 4 days agoLooking for tips on trying to follow musicI’ve been playing guitar for almost 60 years. I don’t read music, so I type out lyrics and have the cords over the proper words. I am now typing my...Reactions0reactionsComments3 repliesTips & Advice
Active 4 days agoDiet and AMDI was diagnosed with Dry AMD 6 months ago. I have not shared the diagnosis with anyone other than my husband. When I did tell another physician about it I...Reactions0reactionsComments3 replies
Active 4 days agoWhat are your experiences with the use of a white cane and /or guide dog?One of our community members expressed interest in learning more about the use of a white cane or guide dogs. Please share your experiences....Reactions0reactionsComments0 repliesCoping
Active 4 days agoBoth eyes Hi I have had wet AMD for 9months in both eyes and have had the injections at different days, this Friday I’m having both eyes at tha same time. I...Reactions0reactionsComments1 replies