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Community Advocates

In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with macular degeneration every day, brings you frequent articles, points of view and advice from leading patient advocates and experts.

Current advocates

Katie Berrill

Katie from the U.K, was diagnosed with Stargardts Macular Dystrophy in September 2017 at the age of 32. The diagnosis was completely out of the blue after a routine eye appointment with her optician, where they picked up the problem and referred Katie to her local hospital. Read more.

Christine Joy Brunson

Christine Joy Brunson is a Pennsylvania Licensed Social Worker, who earned her Bachelors in Social Work at Northern Arizona University. During her undergraduate career she completed an international internship at Cape Town Association for Person with Disabilities (CTAPD) in Cape Town, South Africa. Read more.

Andrea Junge

Andrea is a mother of two young sons and teaches in the small town her family lives in. She was diagnosed with myopic macular degeneration in 2008 after noticing a small blind spot in her right eye while pregnant with her oldest son. Read more.

Richard Hallberg

At age 62 it was discovered at a routine eye exam for new glasses that I had Age Related Macular Degeneration. I have Wet AMD in one eye and Dry AMD in the other eye. I have received over 60 injections in my Wet AMD eye over the past 8 years. Read more.

Theresa Mabe

Theresa, a life-long Maryland resident, was diagnosed at 29 with myopic choroidal neovascularization, secondary to pathological myopia – commonly shortened to myopic macular degeneration. Although she’s adjusted to monthly retina appointments and can accurately interpret her OCT scans, she admittedly is still squeamish when it’s time to be treated with an intraocular injection. Read more.

Linda C. Moore

Linda does not have AMD. She was a long-distance caregiver for her father who had advanced dry AMD/geographic atrophy until his death in 2012. Linda has an increased risk of developing AMD as does her husband because they each had a parent with AMD. Read more.

Jennifer Roman

Jennifer is a scientist, a mom of two teenagers and wife to an Englishman. She is an artist at heart, doing various types of painting and other folk art and crafts. She is learning to play the ukulele and wishes she had more time to try all the things that interest her. Read more.

Cora Lyn Sears

Cora Lyn is an active 72 year old divorced mother of two and grandmother of one. She has wet but stable AMD in one eye, and dry with barely noticeable geographic atrophy in the other. After her 11th injection almost a year ago, she is now on a routine of 12 week check ups, knowing it could begin leaking again at any time. Read more.

Rachel Seavey

Rachel is a wife, mom, and health care professional. Her husband, Sam, has Stargardt Disease (a juvenile onset form of macular degeneration). They have been married since 2001 and have raised two children together. Over the last few years Rachel has witnessed Sam become an ambassador of sorts for the low vision community via his YouTube channel The Blind Life. Read more.

Sam Seavey

Sam was diagnosed in early adolescence with Stargardt’s Disease, a juvenile form of macular degeneration, and was legally blind by his mid-teens. Sam’s first dive into YouTube came in 2012 when he was hired to create content for a mobile technology channel, Mobile Tech Videos 2. Read more.

Denny Simon

Too old to be a baby boomer. Hepatitis C advocate since late 1990’s. Operate Hepatitis C Association with Sue Simon providing education and linkage to care assistance for people living with hepatitis C. Basic education; engineering with specialty in IT business applications. Retired from financial services industry. Two daughters, 6 grands. Hobbies include showing and raising purebred boxers and woodworking. Read more.

Sue LaBar Yohey

In the spring of 2018 Sue retired from her job as a school psychologist. The job had spanned 40 years. Since leaving her “day job” she has concentrated on her “other” job at a local, group, counseling practice. In the group practice Sue specializes in psychological assessment as well as counseling and psychoeducation. Her theoretical framework is dialectic behavior therapy. Read more.

Regular contributors and moderators at are offered compensation for their contributions to the community. If you are interested in joining our team, please contact us at [email protected].