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Community Advocates

In order to stay up to date on latest treatments, drug discovery, clinical studies and how to cope with macular degeneration every day, MacularDegeneration.net brings you frequent articles, points of view and advice from leading patient advocates and experts.

Current advocates

Katie Berrill

Katie from the U.K, was diagnosed with Stargardts Macular Dystrophy in September 2017 at the age of 32. The diagnosis was completely out of the blue after a routine eye appointment with her optician, where they picked up the problem and referred Katie to her local hospital. Read more

Christine Joy Brunson

Christine Joy Brunson is a Pennsylvania Licensed Social Worker, who earned her Bachelors in Social Work at Northern Arizona University. During her undergraduate career she completed an international internship at Cape Town Association for Person with Disabilities (CTAPD) in Cape Town, South Africa. Read more

Andrea Junge

Andrea is a mother of two young sons and teaches in the small town her family lives in. She was diagnosed with myopic macular degeneration in 2008 after noticing a small blind spot in her right eye while pregnant with her oldest son. Read more

Theresa Mabe

Theresa, a life-long Maryland resident, was diagnosed at 29 with myopic choroidal neovascularization, secondary to pathological myopia – commonly shortened to myopic macular degeneration. Although she’s adjusted to monthly retina appointments and can accurately interpret her OCT scans, she admittedly is still squeamish when it’s time to be treated with an intraocular injection. Read more

Linda C. Moore

Linda does not have AMD. She was a long-distance caregiver for her father who had advanced dry AMD/geographic atrophy until his death in 2012. Linda has an increased risk of developing AMD as does her husband because they each had a parent with AMD. Read more

Cora Lyn Sears

Cora Lyn is an active 72 year old divorced mother of two and grandmother of one. She has wet but stable AMD in one eye, and dry with barely noticeable geographic atrophy in the other. After her 11th injection almost a year ago, she is now on a routine of 12 week check ups, knowing it could begin leaking again at any time. Read more

Sam Seavey

Sam was diagnosed in early adolescence with Stargardt’s Disease, a juvenile form of macular degeneration, and was legally blind by his mid-teens. Sam’s first dive into YouTube came in 2012 when he was hired to create content for a mobile technology channel, Mobile Tech Videos 2. Read more

Len Smith

Len Smith is a very “high grade” (Gleason 9) prostate cancer survivor diagnosed by biopsy on 5/3/2013, 5 weeks before his 69th birthday. He had a radical prostatectomy (removal of his prostate) on 6/5/2013. On 6/9/15 he received the bad news that he had a positive PSA, which could only come from PC that had metastasized outside the prostate bed before the surgery. Read more

Sue LaBar Yohey

In the spring of 2018 Sue retired from her job as a school psychologist. The job had spanned 40 years. Since leaving her “day job” she has concentrated on her “other” job at a local, group, counseling practice. In the group practice Sue specializes in psychological assessment as well as counseling and psychoeducation. Her theoretical framework is dialectic behavior therapy. Read more

With the exception of medical doctors, contributors and moderators at MacularDegeneration.net are compensated for their contributions to the MacularDegeneration.net community. If you are interested in joining our team, please contact us at [email protected].