The Grayish Blob in the Night: CBS, AMD, and MeIt first appeared weeks before my diagnosis with wet age-related macular degeneration (AMD). I’d see it when I would get up in the middle of the night, never during the...Reactions0reactionsComments9 comments
My Injection DayOne of the joys of retirement is staying in PJs until breakfast. On injection day, I get up early (early for me) because I like to have my appointment as...Reactions0reactionsComments0 comments
Back to Basics"My writing well has run dry," I moaned to my husband. "After almost 5 years into living with my diagnosis of wet age-related macular degeneration (AMD), and 4 years writing...Reactions0reactionsComments1 comments
Hacks and Hints for Living With AMD"Hey, I need you to read the directions on this package," I said as I walked over to my husband. He was reading. I was cooking dinner. I’m lucky to...Reactions0reactionsComments11 comments
Where's the Light Switch? Moving and Low VisionMoving is _____. Fill in the blank with any word that equals awful or hard work or royal pain. Two days before Thanksgiving in 2023, I was in bed with...Reactions0reactionsComments0 comments
Ads and AMD Awareness"What’s THAT for?" my husband asked. He was looking at an ad on the television. Bright, happy people were biking along a beach. The unpronounceable name of a drug was...Reactions0reactionsComments0 comments
A Day in My Life With AMDIs there a typical day in my life living with AMD? Uh, only occasionally. And only if we’re lucky. For the past 2 months, most of my time has been...Reactions0reactionsComments0 comments
Sometimes You've Just Got to LaughThis fall, I decided that I needed to improve my workspace. I read about a gizmo to hold my laptop. It adjusts so that the screen can be at eye...Reactions0reactionsComments1 comments
Four Years Post-Diagnosis: That Long? Really?Yes, 4 years and 1 month to be exact. I couldn’t remember the exact date, so I got my medical records from my first retina specialist: July 15, 2019, one...Reactions0reactionsComments3 comments
No Car? No ProblemI grew up without a car. My mother was on her own, working in a garment factory, not making much money and raising a child. We relied on the bus...Reactions0reactionsComments0 comments
Sight or Hearing? Pick One“Would you rather lose your sight or hearing?” is how it would start. It was usually late at night, in someone’s dorm room, when we should have been working on...Reactions0reactionsComments6 comments
Low Vision in the KitchenConfession time. I buy and eat processed foods. You know, the easy-to-microwave stuff that puts dinner on the table in 5 minutes. I buy them because I know there will...Reactions0reactionsComments2 comments
My Eye Injection RoutinePre- and post-injection routine? It has taken me about 3 years, 2 doctors, and 1 terrific husband to develop a skill set that makes my visit for an eye injection...Reactions0reactionsComments69 comments
Stability and Stress: The Emotions of an Eye Injection AppointmentThere are days and then there are days. Those of us with wet macular degeneration (AMD) approach the day of our injection with very mixed emotions. I, personally, am both...Reactions0reactionsComments0 comments
You Are Not AloneYou are not alone. This is the first thing to know about your AMD (age-related macular degeneration). You are one of 11 million men and women in the United States...Reactions0reactionsComments0 comments
Molecules, Neurons, and Me“Researchers at the Salk Institute and colleagues have discovered the molecule in the brain responsible for associating good or bad feelings with a memory. Their discovery... paves the way for...Reactions0reactionsComments1 comments
The Three A's of Macular DegenerationA person wearing sunglasses and using a white cane. If we are honest with ourselves, that is the first image of someone with vision loss that would have come to...Reactions0reactionsComments1 comments
Disease Fatigue and Macular DegenerationYes, disease fatigue. I think that I just made up a new condition. Just did a search and it wasn’t there. Chronic fatigue syndrome? Of course, and a bunch of...Reactions0reactionsComments3 comments
Do You See What I See? Understanding the Challenges of Low Vision“Jack Sprat could eat no fat,” my husband says as I turn up the light over our dining table. “And his wife could eat no lean,” I reply. It has...Reactions0reactionsComments0 comments
Head, Shoulders, Knees & Toes: Self-Care With AMD“Head, shoulders, knees and toes, knees and toes...” That was once my exercise phrase. Now my life is governed by “Eyes and ears, back and knees, back and knees.” It's...Reactions0reactionsComments0 comments
