Myopic Macular Degeneration Discussion Board
Welcome to MacularDegeneration.net's Myopic Macular Degeneration (MMD) discussion board. Here you can chat about general topics such as symptoms, lifestyle, diet, and more! Read our Community Rules here.
Hello! I have Myopic Macular Degeneration and am looking for friends with it to chat with. -Andrea
-hi Andrea, I would be very happy to talk with you in that. I don’t know one other person with myopic macular degeneration. Thank you 
Hi! Andrea is not very active on our site at this time, but I'd be happy to point you in the direction of some resources for myopic MD. What are you in search of? I hope I can help! Best, Abby (Team Member).
Does anyone else frequently get blood spots in their eyes from lacquer cracks? My doctor calls them "benign bleeds," and it feels like I have a new one every few weeks.
Hello, so glad to have found this community! I have posted in some of the other threads but will post my story here. High myope, started wearing glasses at age 6. Left eye was -14, right maybe minus 10 or 11. I'm 54. Was having gradually more trouble seeing, especially faces and driving at night. Treated for dry eye with Xiidra eye drops, this helped somewhat. A year ago had cataract surgery which was life changing! I have about a minus two prescription which I use for driving and watching movies. Don't even wear my glasses for work because my work is close up. It is so amazing to be free of my thick glasses!!!!
OK all was great until about four months ago. Had posterior vitreous detachments in left eye, then in right. I describe this as "saran wrap in my eye" because of the floaters. It seems to have improved or maybe I am getting used to it. Then 8 weeks ago had a small macular bleed on the left. Colored circle in my central vision with a blind spot and wavy lines in it. Kept hoping it was a migraine aura but sadly no. So I stopped driving at night which is fine with me anyway. Been followed by a retina specialist. Normal fluoroscein angiogram which means no "wet" component (good news) but that there is no treatment (not good news). BUT I have noticed the vision gradually returning! It is not perfect but much better! And I went back to the retina specialist who said the bleed has resolved! My vision in that eye went from 20/70 right after the bleed to 20/40 plus two (almost 20/30!). With my glasses on of course. So still an uncorrectable vision loss in that eye. But I was so very pleased. This was despite continuing with my hot yoga. So I guess I can continue that! In fact, the retina specialist even discharged me! Will follow up with my regular eye doctor in six months. And of course, return to the retina guy if he or I notice any changes. He was not able to tell me whether I would have more problems, but I do have "myopic macular degeneration". He says this is less aggressive than the age-related form. He does see changes in the retinas, my regular eye doctor had thought I was developing an epiretinal membrane which apparently can happen after cataract surgery in younger folks, and requires surgery, but the retina guy said no, this was just changes of "myopic macular degeneration" and not related to the cataract surgery or to the recent posterior vitreous detachments. So no treatment. That is hard, wish I could do something to keep my retinas as healthy as possible. Well actually I guess there is...I will continue to exercise and work to keep my weight down (had gained about 20 pounds over the past couple years, still at a normal BMI but want to get thin again...) and continue eating a ton of leafy greens🥬 and legumes (I'm vegetarian). In terms of vitamins, the retina guy said "they don't help MMD) and my regular eye doctor said eating the way I do is the best way to get the nutrients. He did advise not taking vitamin E though.Thank you for this site and this thread! Please feel free to comment about your own experiences and any thoughts...
Hi
, we're so grateful you found our community and shared some of your story with us! I'm so glad to hear that you've been working closely with your retina specialist and regular eye doctor and that your bleed is on the mend. I hear your frustration in the lack of treatment options available, and I know that's something that MANY here can relate with as well. But getting those leafy greens in and practicing good health habits and exercise can do wonders for our eyes, so I commend you for making your health such a priority. I also encourage you to consider sharing your story in our community story section at the following link: https://maculardegeneration.net/stories/ It's a great spot to read others' stories and share your own.
Thank you again for being a part of our community. We are here for you and cheering for you!! - Shelby, MacularDegeneration.net Team Member
Hi Mrsbedbug, you have confirmed my thoughts on vitamin E, I thought I had heard or read that somewhere. Nobody on this blog knew. I have been a "pathological" myope since 6ys old also. I took my glasses off for near work and reading too.
In February I was diagnosed with mCNV, (myopic Choroidalneovascularization) I don't know if it is the same as Myopic MD. My research has said that it was important to differentiate this from the Age related macular degeneration.
I know that it is genetic I was told. I have been getting injections of Avastin. It is the standard treatment but I would like to try the Lucentis if it is better and if my Health Insurance will pay for it. (?) I went to the Genentech website. It's hard to find information on my condition because it is a bit rare. It usually happens in younger to middle aged people, I am 73.
The prognosis is not so good in someone diagnosed in later years. As for diet I am mostly vegetarian also. But overweight.
I recently came across some information of a study that indicated the benefit to Eye health of eating Oranges! So I am doing that along with spinach salads and Sardines for Omegas.
