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Just started injections

I’m reaching out for support here because I know you have all been through and are going through similar situations. Just over 9 months ago I had a macular bleed. Fluorescein angiogram (forget the exact name of the test that looks at the vessels to see if there is leakage) did not show leakage and the bleed resolved. The retina specialist discharged me with the diagnosis of “myopic macular degeneration”. I am 55. He said to come back if I or my regular eye doctor notice any changes. Last week
at my yearly exam, my eye doctor said the vision in that eye was two lines worse. He wanted to do laser treatment for some fibrosis I have behind the lens implant (I had cataract surgery a year and a half ago). Glad I insisted on going back to the retina guy to be sure the vision loss was not a retina problem since this morning the RS could clearly see leakage on the retina. Even without the dye study. So I had an injection of Eyela (not sure of the spelling) two hours ago.

So even though I have Myopic MD it seems it is treated like the age-related form at this point. Going to do a literature search on this. Struggling with this, since I was told this is more being that Age Related MD. Reading about it is hard and scary though. When I was initially diagnosed I had to stop reading up on it for this reason! Hoping for some reassurance from those who have been/are currently there!

  1. We're sorry we didn't get back to you sooner, but are happy to hear that you were able to receive treatment so quickly! Macular degeneration can be stressful to read about, but know you're not alone! Have you had a chance to read these articles? https://maculardegeneration.net/living/diagnosis-optimism, https://maculardegeneration.net/living/emotional-aspects-diagnosis, https://maculardegeneration.net/living/myopic-diagnosis. We really appreciate you being an active member of our community! How are you feeling lately? Please keep us posted! Best, Abby (Team Member)

    1. I wanted to checkup on you to see how you are doing with the injections. I know shared several articles with you. I hope you found them helpful. Best wishes, Sharon Moore advocate

      1. Abby and Sharon, thanks so much for the replies! It has been 13 months since my diagnosis of myopic MD and I'm feeling more at peace with it. I had one injection for "leakage", the RS said I do have neovascularization in the left eye, in February. At my follow up visit, he said the injection did not make a difference and that since the bleeding in Myopic MD sometimes resolves on its own, he would not do another injection at that time. So, I was happy not to have to have the injection (that is scary and painful to say the least) but disappointed that the injection did not have an effect. In the meantime, my vision in that eye is 20/30 - 20/40 so not terrible, however the distortion in my central vision where I had the initial bleed is weird and makes reading and driving impossible with that eye. I no longer drive in the dark, which I didn't like doing anyway. My employer was willing to change my work schedule so I no longer work the evening shift (which is bonus - yay!). I am going for a second opinion "in the big city" next month. My son is going to drive me. I am lucky to have a husband and two adult sons to be my drivers! Thanks again for reaching out. Hope all is well for you and take good care.

        1. I'm so glad to hear this update! Thank you for reaching back out. Echoing Sharon, I'm hopeful that the second opinion will bring you some ease. Lovely that you have a supportive husband and kids through all of this - it really makes the worlds difference. Sending warm regards. Abby (Team Member).

      2. so good to hear from you and that you have peace with your diagnosis. I think getting a second opinion will give you even moore peace. How awesome that your employer made accommodation for your condition. Please let us know what you find out after your appointment. Best wishes, Sharon Moore Advocate

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