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Navigating Life with Macular Degeneration: How Much Has It Impacted Your Life?

Hello everyone,

I've been following the discussions in this forum. Many of you have shared how macular degeneration has significantly impacted your daily lives. On seeing accounts of how this has impacted your lives, I am curious about a few things. I hope my curiosity does not come across as overwhelming, insensitive, or ignorant, so please bear with me.

I can only imagine the transition of life after being diagnosed. I understand that adapting to this new reality is not straightforward and comes with its set of hurdles. I have noticed that since it is a form of visual impairment, there are visual challenges that come with it. There have been assistive technologies developed solely for visually enhancing your experience, however, I am curious to learn more about how this has affected your mobility skills too.

How Do You Navigate the New Normal?

I'm interested in hearing about how you've adjusted to life since your diagnosis. I'd like to understand the changes you have made to your daily routines and living spaces to accommodate your changing vision, if any. Were there any changes that were particularly upsetting?

Do You Use Assistive Technology?

By browsing through your website, I noticed the E-Sight glasses are recommended as one of the best options. It seems that tools and assistive technologies have played a certain role in maintaining independence for some (I could be wrong in this or might have misinterpreted some of you). I have previously seen simulation videos of how people with macular degeneration would see. Has this impacted your ability to travel alone? Or perhaps you have gotten accustomed to using tools and assistive technology to help you?

I'm curious about your experiences with various assistive devices and ‘adaptations’ to help you navigate, such as guide dogs, or walking canes, or perhaps something else. Which technologies have been helpful, and which ones didn’t meet your expectations? How did they change your quality of life?

Your stories, advice, and insights are a source of strength and guidance. Thank you for considering sharing your journey. Your courage in facing the unknown challenges of macular degeneration are truly admirable.

Warm Regards,

CuriousCat

  1. I notice you just joined our community today, so I'm giving you a link to our Community Rules for your convenience https://maculardegeneration.net/posts/community-rules. I hope you continue to enjoy reading the stories that are here for all to read. Wendy, Patient Leader.

    1. Thank you! I will have a look at them.

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