If you have Charles Bonnet Syndrome what were your earliest symptoms?
I was diagnosed with Charles Bonnet Syndrome (CBS)yesterday. If I had not ran across a Reddit thread on CBS I would not have known to ask my doctor about it. I only experience symptoms at night. A bright light when I close my eyes, random letters and number all jumbled up, & seeing strange shadows.
I'm sorry to hear you've been diagnosed with CBS. My mother had this, as you know. Her symptoms were much worse. I think her first symptoms were seeing shelves, which weren't there, on a wall. You are much younger than her and aware of what is happening. I hope your symptoms won't increase. Wendy, Patient Leader. 
I'm sorry this is happening to you. Knowledge is power, and you are aware of the threat to your vision and the effects you could encounter. I hope the Izervay works for you. Keep up your spirits! thank you so much for your kind words of support. So far my vision is holding with Izervay. Regards, Sharon Moore patient leader
All I can say is we need a miracle.
I hope they get working on new treatments for the wet and the dry form. My mother was legally blind with the dry form. At least they are trying for treatments and cures now. A miracle would be greatly appreciated! Wendy, Patient Leader.
I second that sentiment. So hopeful for new medical advances in vision research and cures.
it seems to me that more research and trials are being conducted now. The COVID period probably slowed down research relating to the eyes, but it seems to be going ahead on a few fronts now. Wendy, Patient Leader.
That's what we all need. Many years ago I experienced a visual disturbance. I saw simple lines in the distance on a wall, I was in a hospital emergency room. I had an allergic reaction to some drug that was given to me intravenously, as soon as the drug was withdrawn the visions went away! How freaky and and a little scary to say the least. I now wonder if that was a kind of forewarning. Anyway, it's good to know that whatever happens we can handle it with knowledge and support.
Here's lookin' at us! I remember during Covid I wasn't allowed to visit my mother in the nursing home. They offered me the option of seeing/talking to her through the window (after a 2-day drive). She was already "seeing" visions out of the window. I didn't think that would be a productive exercise for any of us unfortunately ! Wendy, Patient Leader.
