If you have Charles Bonnet Syndrome what were your earliest symptoms?
I was diagnosed with Charles Bonnet Syndrome (CBS)yesterday. If I had not ran across a Reddit thread on CBS I would not have known to ask my doctor about it. I only experience symptoms at night. A bright light when I close my eyes, random letters and number all jumbled up, & seeing strange shadows.
All I can say is we need a miracle.
I second that sentiment. So hopeful for new medical advances in vision research and cures.
That's what we all need. Many years ago I experienced a visual disturbance. I saw simple lines in the distance on a wall, I was in a hospital emergency room. I had an allergic reaction to some drug that was given to me intravenously, as soon as the drug was withdrawn the visions went away! How freaky and and a little scary to say the least. I now wonder if that was a kind of forewarning. Anyway, it's good to know that whatever happens we can handle it with knowledge and support. @Brown Eyed Girl
Here's lookin' at us! That must have been a distressing time for you and your Mom.
When my Ma was dying she had hallucinations, from the drugs I think. They withdrew the drugs for cancer and then sent her home to hospice. I @Brown Eyed Girl
