Does anyone have mCNV?
What treatments are there? Has anyone tried Lucentis?
Hi
thanks for joining our community! There are different medications on the market for different types of MD. Which have you been diagnosed with? From there, I will send along some articles/information we have on treatments. Wishing you well, Abby (Team Member). I have mCNV Lucent is has been advised after I researched this. Has anyone any experience with Lucentis?
I know you've done your research, but I found this information which says that Lucentis is the only FDA recommended treatment for mCNV, although other anti-VEGF medications have been used off-label. You may find this interesting and helpful. https://www.aao.org/eyenet/article/myopic-choroidal-neovascularization Warmly, Wendy, Patient Leader.
Hello Brown Eyed Girl! I had found the site you mention. As of now, I have had 3 injections of Avastin. I'm aware of Lucentis and that it is the recommended treatment, however I think my insurance may not approve of that use unless the Avastin fails.
I am at 3 months and I don't see much improvement in vision at all. I was also losing the yellow color and green (because yellow and blue= green) and I think that has improved somewhat. At this point I wonder if I should call my Health Insurance program (Medicare). I would like them to approve this for me. It's good to know that people on this site do their research, Thank you Wendy. P.s. I went to Lucent is website also and they can sometimes help people too.did your doctor expect (or hope) that your vision would improve or was maintaining the status quo the aim? I've seen the useful information on the Lucentis website, but I wanted to ensure I shared information without the possibility of bias. Others in the community may know how long they had to stay on Avastin before switching, if appropriate. I hope someone will chime in. Warmly, Wendy, Patient Leader.
Thank you, Brown Eyed Girl. I hope someone can answer this. I think that it is at three months if there is no improvement that I can see about the use of Lucentis. I am there now. I think my Doctor's aim was only to prevent progression and I think that is all I can expect unless someone out there has some other information and some experience with Lucentis.
