shelby-comito
Rachel Seavey Moderator
My advice is that it is okay to be scared, but take comfort in knowing that you can still live a very fulfilling life. There are very few things you can't do, but you will just need to learn a different way to do many things.
Reach out to others that are living with your diagnosis. This website is such a great start. There are also great YouTube channels that deal with vision loss. FaceBook is also a good resource, there are groups specifically for people with MD.
shelby-comito Community Admin
Hi
p.s. We also have a Facebook page, if you'd like to check it out and connect with others there as well - https://www.facebook.com/MacularDegenerationDotNet/ I agree, Facebook can be a really helpful tool in connecting with others!
Andrea Junge Moderator
That is a great question,
A new diagnosis can feel scary and confusing. It is so normal and more than okay to feel those feelings! I recently wrote an article about this exact thing called "Buy the Tickets" that you can read here if you're interested: https://maculardegeneration.net/living/change-cope-vision-loss The best advice I received when I was newly diagnosed was to feel all the feels, but then move forward and not allow change to be a joy thief. Change really can 'grow' us as individuals if we allow it to.
And...if I'm being completely honest, macular degeneration has actually improved my life in more ways than not. It has given me the permission I needed to live my best life.
Thank you for sharing your thoughts! To read more about living and coping with macular degeneration, check this out https://maculardegeneration.net/living-coping
-Andrea, (MacularDegeneration.net Team Member)