Adapting to Changes in Vision
How do you find yourself adapting to new changes in your vision? Are you someone who likes routine? How do you find a new routine when the time comes to having to make change in your daily life?
I have always been a person that thrives on change. That has served me well since being diagnosed with Macular Degeneration and ChronicDryEye. I have made many changes to accommodate my worsening vision. Especially find my iPhone and iPad helpful. They allow me to enlarge text and change background color to make reading easier. Sharon Moore Advocate most helpful to me is the magnifier app on my iPhone. It is lighted and the magnification and lighting are adjustable. The accessibility settings allow me to change dark mode and enlarge text, both helpful to me. Sharon Moore advocate I'm so happy to hear that this is working well for you! I'm sure this tip will be helpful to someone else in our community. Warm regards, Abby (MacularDegeneration.net Team Member).
I like routine this eye decease scares me
I agree,
, I think I like routine as it’s comfortable. Things like updates on my phone, or major changes throw me out of my comfort zone. But I’ve studied enough about macular degeneration that I understand what may happen, as opposed to what is not likely to happen. Knowing my chances, and knowing that I’m doing all I can to preserve the sight I do have, has helped to reduce some of that stress. I hope we can help you reduce some of that fear. Cora Lyn, MacularDegeneration.net Team Member
Thank you for answering . I am 82 I realize it's possible I might retain my sight for the rest of my life. My right eye is wet. Left eye is dry. I have lost a lot of sight in right eye. It could be a lot worse . I will let Jesus and God his father take care of me .Cora lyn
I am also a person who likes Routines for exactly the same reason. They are comfortable. I have had wet macular degeneration since my 50s and I am now 70. I had a lot of decent years between the and now. I had wet AMD in my right eye when it was diagnosed and dry AMD in my left eye. Plus I have Glaucoma in both eyes. An out 1 yr ago, my dry AMD turned into wet AMD. I didn’t expect that since it has stayed dry for 20 yrs. I knew it was possible, but most drs say it’s not likely. So I heard what I wanted, took my Presser vision vitamins, and hoped for the best.
My Glaucoma stayed under control until a few years ago also. My doctor added a third eye drop that just dried my eyes and made me feel worse. So he used laser. This worked well the other 3 times I had it, but brought the pressure down less and less each time. The last time it began to rise he inserted tubes into my tear ducts to help drain the fluid. Once again it worked…for a while.
Last week, the pressure jumped 10 degrees higher than it ever registered. he looked and looked at it through the
Instrument and shook his head. There was no real reason for it to raise up that much. He said he was a Macular Degeneration Specialist and he had cone all he knew so he sent me to a Glaucoma specialist I will see next Friday.
My most recent field test showed I have many blind spots in my right eye and large floaters in both eyes. I have tried to work around each new problem that lessened my sight, but I walk into things misjudging how close or far they are. I also began seeing a black”thing” at the bottom of my left eye. When I see it I think it’s my cat, and look over at him, but it isn’t him. The dr said he didn’t know what that was. I wanted to say “well duh, neither do I”. Maybe the new dr can manage a guess.🤨
I suppose I should be happy I’ve had 18 yrs of sight since I was diagnosed when they told me it would be 3-5 yrs. The thing is I’ve been loosing it rather slowly and so until I had to give up driving 3 years ago that was the worst. It still is. Having both eye diseases is a double whammy because you lose your peripheral vision AND your central vision, but they don’t tell you that you will also have blind spots in the meantime and the floaters that you have to keep blinking them around in your eye so they don’t cover what you’re trying to read.
Anyway, this is way too long for a post..sorry😁
Connieyour post was not too long at all. I am glad you shared your story. You have coped very well for having two serious eye conditions. I hope the glaucoma specialist will have a treatment option for you. Please update us after your visit to the specialist. Best wishes, Sharon Moore Advocate Thank you for sharing your story with us! It sounds like you have been through quite the time of navigating different doctor's appointments, different doctors' perspectives, and managing your symptoms over the years. Giving up driving is difficult because you feel like you're losing your independence, so I can understand how this feels like the worst thing to lose. I hope that the pressure continues to go down in your eyes with the care and treatment your doctor provides you with. Please continue to let us know how you feel and thank you for being a part of this community. All my best, Abby (MacularDegeneration.net Team Member).
