Accessibility

My Story and My Way Forward - Stay Positive and Help Others, Too

I'm 65 yrs of age and live near Mansfield in England. I was diagnosed about 6 months ago after having had a cataract operation. Luckily a very observant practice nurse spotted a shadow on my retina and put in place the investigation procedure, so I had the dye injections and images taken of both eyes which revealed that I have early-stage wet macular.

I guess I'm one of the lucky ones

Because they spotted it early, I now see the consultant every couple of months. My condition is stable, and I just have one small blurry patch that has stayed stable. I can still drive luckily, and the consultant says that he will try and keep me able to drive for as long as it is safely possible. No injections yet – so I guess I am one of the lucky ones.

Helping others

I have stayed very positive about things and have become a volunteer at the eye clinic with a local organization called Sight Support Derbyshire. I work as an advocate for people who have received the diagnosis of severe vision impairment. I help them to register with social services and the local authority, then to make sure that they get the help and support that they will need. I often use the following phrases to clients:

  • “You are still you and worth exactly the same in life as before the condition developed.”
  • "You can still do 99% of what you did before BUT somethings you may do differently.”

Positivity is key

The big key is keeping people positive and moving forward.

I like the idea of this forum and will not hesitate to include details in the useful info that I give to clients.

By providing your email address, you are agreeing to our privacy policy. We never sell or share your email address.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MacularDegeneration.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.