Sometimes You Gotta LaughLife lessons gleaned from living with this diagnosis of myopic macular degeneration are many. From the early days of diagnosis, accessing the damage done from the onset of the bleeds...Reactions0reactionsComments5 comments
Pegcetacoplan Side Effect HuntingFor the past year and a half, I have been in a new study. The title is... wait for it... A Phase 3, Open-Label. Multi Centered Extension Study to Evaluate...Reactions0reactionsComments6 comments
Tips for Starting (and Sticking to) an Exercise RoutineImproving your physical fitness has a host of benefits, whether you have macular degeneration or not. Walking, swimming, or dancing can help you build a healthier heart, improve your well-being...Reactions0reactionsComments0 comments
What Do You Like About Your Eyes?What do I like about my own eyes? That is a very interesting question, especially considering my diagnosis of Myopic Macular Degeneration. The process of finding anything positive may sound...Reactions0reactionsComments6 comments
Is It Time To Visit a Low-Vision Center?When a friend with macular degeneration told me she had an appointment at a Low-Vision Center (LVC), I was curious and followed up with her afterward to see what she...Reactions0reactionsComments4 comments
Home Automation With Alexa, My New Best FriendMy smart television has Amazon Alexa, and I’ve been learning to use her. I can change the channel and increase/decrease the volume with voice commands. In the meantime, I also...Reactions0reactionsComments8 comments
HopeI recently read an article by Mr. Matthew Kelly, a New York Times best-selling author, that really impacted me that day. The article presented generally, how do ordinary people living...Reactions0reactionsComments1 comments
My Eye Injection RoutinePre- and post-injection routine? It has taken me about 3 years, 2 doctors, and 1 terrific husband to develop a skill set that makes my visit for an eye injection...Reactions0reactionsComments69 comments
Is This Progression?Everyone I know that has age-related macular degeneration (AMD) has a degree of fear of progression. Not only am I fearful I will have progression, I am fearful I may...Reactions0reactionsComments30 comments
Should MD be a Factor in Appliance Choices?When the baking doesn’t turn out, blame the oven! When the Christmas turkey is not done on time, blame the oven! In my case, it WAS the oven’s fault. I...Reactions0reactionsComments3 comments
Macular Degeneration Awareness Month 2023 GiveawayThe MD Awareness Month 2023 Giveaway is now closed. Thank you for your interest! For AMD and Low Vision Awareness Month, we are giving away an eye mask and bump...Reactions0reactionsComments0 comments
Macular Degeneration Awareness Month 2023This month we are raising awareness for age-related macular degeneration (AMD) and low vision. Our goal is to bring the MacularDegeneration.net community together to talk about shared experiences, tips, tricks...Reactions0reactionsComments0 comments
Communication DisabilityI get free, audiobooks from the National Library Service. Why? Because I have a communication disability. I never think of me having a communication disability. I have a great vocabulary...Reactions0reactionsComments0 comments
Challenging TimesMy husband and I have been married for over 37 years. That is over half of my own age. There are times that this passage feels like a lifetime and...Reactions0reactionsComments1 comments
Ask the Advocates: What's on Your Bucket List?Sometimes we need things to look forward to. In this "Ask the Advocate," we take time to learn about a few of the things on our Health Leaders' bucket lists...Reactions0reactionsComments0 comments
Dry Macular Degeneration and ProgressionAs my dry age-related macular degeneration (ARMD) progresses I think about what I’ve done to be prepared. Have I done enough? What if my vision changes quickly – could I...Reactions0reactionsComments36 comments
Building Your Own Support SystemA frequent topic of conversation in the macular degeneration (MD) community is the need for the support of family and friends. It always saddens me when our members have no...Reactions0reactionsComments5 comments
Driving at SunsetSomehow the end of 2022 is right around the corner. This calendar year marked a big change in our lives, we are officially empty nesters. Our fourth child has successfully...Reactions0reactionsComments0 comments
Words We All Want To Hear: “Remarkably Successful”"Remarkably successful!" Those are the words we all want to hear when we are discussing outcomes with our retina specialist. And those are the words I heard yesterday. The appointment...Reactions0reactionsComments16 comments
Daily Challenges of AMDMyopic macular degeneration (MMD) has a sneaky way of making its presence known. My initial indication was one day, about 3 years ago. I had started a walking regimen in...Reactions0reactionsComments3 comments