Caregiving With Geographic AtrophyIn my early 60s, I shared caregiving for my mom with my sister. Mom had wet macular degeneration requiring monthly injections. My caregiving involved taking care of my mom’s bills...Reactions0reactionsComments2 comments
It Goes OnThe great American poet Robert Frost made the following remark in an interview in 1954 with a Mr. Ray Joseph of The Cincinnati Enquirer: “In three words, I can sum...Reactions0reactionsComments3 comments
Sight or Hearing? Pick One“Would you rather lose your sight or hearing?” is how it would start. It was usually late at night, in someone’s dorm room, when we should have been working on...Reactions0reactionsComments6 comments
Community Views: Support for People Living With Dry Macular DegenerationIf you have been diagnosed with dry macular degeneration, you may be experiencing a range of emotions that include anxiety, confusion, sadness, or disappointment. You may be wondering what your...Reactions0reactionsComments9 comments
Don’t Suffer in Silence. Speak Up!I have had dry age-related macular degeneration (AMD) for 8 years now. In the early years after diagnosis, there was very little effect on my daily life. Four years ago...Reactions0reactionsComments6 comments
When Being Diagnosed With Macular Degeneration is Good News — Really! Never could I imagine EVER thinking a diagnosis of age-related macular degeneration (AMD) would be GOOD news... until my friend called with this exciting news following an exam by a retina...Reactions0reactionsComments0 comments
It's Important to Perform How You PracticeOne of my favorite mantras in life is, “It is important to finish what I start.” I use that phrase literally and figuratively in all aspects of my life, whether...Reactions0reactionsComments2 comments
Facing Uncertainties and Decisions With Macular DegenerationThey say "timing is everything," but with age-related macular degeneration (AMD), nothing is certain. There are many decisions to make, and it’s difficult to get the timing right. One decision...Reactions0reactionsComments7 comments
Our Prime Purpose in Life"Our prime purpose in this life is to help others. And if you can’t help them, at least don’t hurt them." - The Dalai Lama Lately I have become more...Reactions0reactionsComments0 comments
Low Vision in the KitchenConfession time. I buy and eat processed foods. You know, the easy-to-microwave stuff that puts dinner on the table in 5 minutes. I buy them because I know there will...Reactions0reactionsComments2 comments
Geographic Atrophy: A New Phase BeginsSince I began working as an advocate and writer for the Macular Degeneration community, I have blithely written about the progressive nature of age-related macular degeneration (AMD). I say "blithely"...Reactions0reactionsComments18 comments
Keeping Safe With Vision LossWhen I had my last dogs, we were walking and the coyotes were howling on the hillside. When the coyotes started excitedly barking and yipping, my dogs both did a...Reactions0reactionsComments1 comments
Be Curious About Macular DegenerationAsk questions — lots of questions. Never be reluctant to share your experiences about age-related macular degeneration (AMD) or to voice your fears and concerns. This lesson was reinforced by...Reactions0reactionsComments0 comments
My Macular Degeneration JourneyIn 2017, I went to my optometrist for my annual exam. I wasn’t experiencing any symptoms. After peering into my eyes, he said he saw something that didn’t look normal...Reactions0reactionsComments0 comments
The Bright Side"No one ever injured their eyesight by looking at the bright side of things.” - The Celtic Sage Grey Wolf (UK) Macular degeneration is a lot of things. It is...Reactions0reactionsComments1 comments
My Diagnosis Journey: ChristineAt a very early age, I knew that I saw things differently than most. I vividly remember going to the school nurse’s office each year to complete the vision test...Reactions0reactionsComments12 comments
My Diagnosis Story: WendyTen years ago, I was diagnosed with dry age-related macular degeneration (AMD) by my optometrist. I was about 60 at the time. At this memorable visit, the optometrist advised me...Reactions0reactionsComments19 comments
My Diagnosis Story: LindaIt's my 10-year anniversary with macular degeneration! It’s hard to believe it’s been over 10 years since I was diagnosed with age-related macular degeneration (AMD). There have been many highs...Reactions0reactionsComments0 comments
Ask the Health Leader: Our Best AdviceWe asked our Health Leaders what they wish someone had told them when they were first diagnosed. After looking back on their journeys, they offered their best advice. My advice...Reactions0reactionsComments11 comments
Haven't I Been Lucky?When I was diagnosed in 2019, the word "lucky" never entered my mind. I am sure my first thoughts were, “Why me” and “Now what”, among other seemingly other doomsday...Reactions0reactionsComments7 comments