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Person with big purple hair covers one eye and looks out through the other, revealing a beam of veins and vision spots in her pathway.

See the World Through My Eyes

It’s easy to research and read about macular degeneration symptoms, but it’s much more difficult to comprehend what it’s actually like to see the world through the eyes of someone with macular degeneration. We hear from many of you that this is one of the hardest aspects of living with macular degeneration – others just don’t really understand what it’s like.

See the world through eyes with macular degeneration

We want to help bridge that gap. For Macular Degeneration Awareness Month this year, our theme, See the World Through My Eyes, focuses on what it really feels and looks like to live with macular degeneration every day. We’ve created a visual of these symptoms below to help others truly understand what some of these more common symptoms of macular degeneration are like. We hope this article is something that you can share with your family members, loved ones, and friends in order to help them better understand what life may be like through your eyes.

Blurry central vision

One of the most common symptoms of macular degeneration is blurry central vision. In the following two images, you can compare a visual without this symptom to that of one who is suffering with blurry central vision. Blurriness can especially impact one’s ability to accomplish more detail-oriented activities like reading, sewing, and painting.

A clear vision of two women sit outside drinking coffee and laughing with one another
A blurry image of two women sitting outside drinking coffee and laughing together

Straight lines appear distorted or wavy

Distorted vision, also known as metamorphopsia, is when straight lines appear wavy. This symptom is typically associated with wet AMD and myopic macular degeneration. Many doctors encourage patients to use an Amsler Grid regularly to check their eyes and notice if lines become distorted and wavy. The following images show the view of a staircase compared to the view someone may have who is experiencing this symptom.

View of an ascending stairwell
View of an ascending stairwell and the lines of the stairs appear wavy and distorted

Blind spots

A blurry or blind spot, also known as a scotoma, can appear and obstruct one’s visual field. With macular degeneration, a blind spot most often appears in the central visual field. If the disease progresses, the blurriness or darkness of the spot becomes larger and more severe, making it very difficult if not impossible to read, drive, or discern faces. The following image displays what these blind spots may look like for some.

A black and white bingo board
A bingo board is obscured with blind spots

Changes in color perception

Another symptom of macular degeneration is changes in color perception. Photoreceptor cone cells are responsible for our color vision and are most densely located in the macula. When the disease weakens these cones, the wavelengths will be perceived differently and the correct signals will not be sent to the brain. This symptom occurs in both AMD and Stargardt disease, with some people developing complete color blindness in late Stargardt disease. If the disease progresses, more cone cells become weakened and damaged, risking the loss of all color perception. The following images display how colors can become distorted with macular degeneration.

A pack of bright colored pencils
A pack of colored pencils but the colors all appear dull and grey

Do any of these symptoms impact you? Share in the comments below!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MacularDegeneration.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Christine Joy moderator
    6 days ago

    Great article..very informative
    Loved the images and explanations. I feel like the symptom that resonates most with me is the blurred central vision and dullness of color but that is only if I am a significant distance from.the object I am viewing

  • shelby-comito moderator author
    6 days ago

    Thanks so much for the feedback and sharing which ones resonate with you the most, @ceejaybee! It’s so helpful for us to here your thoughts and personal experiences! – Shelby, MacularDegeneration.net Team Member

  • Linda C Moore
    7 days ago

    Great article, Shelby! Terrific illustrations that I’m sure will help not only those with macular degeneration, but also those who weren’t aware of what it’s like to have the disease. Thanks!

  • shelby-comito moderator author
    6 days ago

    Thank you so much, @lindacmoore! I certainly hope so as well. Appreciate your feedback! – Shelby, MacularDegeneration.net Team Member

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