Should I see a specialist?
I was recently diagnosed with early-stage dry AMD (lots and lots of drusen but no visual changes). I'm 52.
My drusen were only found because I told my optometrist that I have a very high genetic risk (CFC CC and ARMS2 TT). He told me to start on AREDS2 supplements, follow the usual dietary advice for AMD, exercise and keep BP and cholesterol down, use my Amsler chart, and he'd take another look at my exam next year.
That's all good, but I've had enough medical issues over the years to know "let's wait and see" isn't always enough. I won't be passive about my vision -- I'm an artist, gamer, avid reader, and I'm still working in a field where my sight is essential.
I know there's no additional treatment for dry AMD, but should I be looking for a specialist? My area is medically understaffed and it can take months to get an appointment. I think I'd rather have a relationship in place before my condition worsens.
I have wet AMD and was not told for 6 years I had drusen, annoying. I too am an artist among other things. One problem I can see is you’re a gamer, avid reader, and artist this sounds like a lot of sitting. I found exercise brilliant you need to get moving. If not already. This gets oxygen up to your eyes and lowers stress. 
not being told you had drusen for 6 years is more than annoying. Not knowing robbed you of the opportunity to make lifestyle changes earlier on. I agree with the importance of exercise. Diet is also important to help slow the progression. Thank you for joining the conversation, Sharon Moore, patient leader. Thanks for your reply! You're right that having exclusively sedentary hobbies would be an issue; I only mentioned those because they require more detailed eyesight than my kayaking, yoga, biking, and swimming. 😀
Absolutely. No doubt! 1st thing I was told, if anything changes vision-wise, call immediately. So you need access. Just in case. Yeah. You can look forward to a specialist. That'd do you good, I believe. I encourage you to make up your mind, real quick. I was too, a gamer and a reader, you know. Also a movie enthusiast.
Hi Kay! I am 56 and have had a diagnosis of Myopic Macular Degeneration for over two years now. I found an excellent Retinal Specialist that I see every 4-6 months. I feel very comfortable with his care. The first Retinal Specialist I saw was not helpful. So, it took me a year or more to establish a relationship with someone I trust. Even though I have to drive further (with dilated eyes going home into the sunset with double sunglasses on!!) it is absolutely worth it. My advice is to find a RS you trust sooner rather than later. Like others have said, once you are a patient of record, if you have a vision change you will get right in versus a big headache trying to get in with a specialist. Hopefully you won't have a problem but it is good to be prepared.
BTW my 24 year old son did 21 and Me and found out he has two genes for Age Related MD...plus he is high myopia like me....
