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Retina Specialist Visits

Tell us about your most recent visit to the eye doctor.

https://maculardegeneration.net/living/doctor-patient-tango

  1. my most recent to my eye specialist was quite disappointing. She was running very late, which I understand and don't mind, as long as she gives me sufficient time when she gets to me. Unfortunately she spent so much time apologising for being late, that it took away from my appointment time. I had no change on my scans, and that's what really matters, but I had questions to ask (not too many!) and we didn't get to most of them. When she stood up, I knew that was the end of the appointment and I felt a bit let down. Perhaps I expected too much from her; I'm not really sure. Wendy, Advocate.

    1. I can definitely agree that when a doctor runs late and doesn't really take the time to slow down and listen to you, it can result in you feeling disappointed and depleted. This happens so often! I really hope that your next appointment runs on time and that she is able to value your time as much as she values yours. Thanks for sharing this experience with us. Best, Abby (Team member).

  2. Hey Brown Eyed Girl, Keep in mind that your doc is very well paid for his time, but with your money. You have paid for a specific amount of time and maybe you wont need all of it, but ask the doc if you could ask questions in the time allotted for your appointment. If the answers can be found online, don't waste her time...she has probably answered that question hundreds of times...but it is the first time for you, and you paid to get it answered

    1. Thanks . I will keep all of that in mind. It is true that I am paying for her time, and quite handsomely, too! I always try to find the answer myself before I ask her, but sometimes it just needs that informed medical opinion to get to the bottom of things. I have chronic dry eye too, but she naturally focuses more on the macular degeneration, and often it is the dry eye questions that are more pressing at the time. Best wishes, Wendy, Advocate.

    2. we are in the same situation having both macular degeneration and chronic dry eye. The retinal specialist I have now is very good about chronic dry eye in addition to the MacularDegeneration. Sharon Moore Advocate


  3. Like every 6-7 weeks, after jumping through all the hoops to get to the doctor; he pops in, gives the injection and leaves. Assembly line medicine. When pictures are taken, he glances at screen, says "looks good" - and chuckles at my response, "Now if only I could see." as he walks out the door.

    1. do you get a chance to ask any questions? Some doctors seem in a rush, and their bedside manner might leave something to be desired, but they do a good job. It would be great if they could do both at the same time. Best wishes, Wendy.

    2. This sounds really frustrating and dismissive. I'm sorry to hear that you've yet to find a doctor who makes you feel really taken care of and heard. How did you find this doctor? Have you had a chance to see if there's anyone else in your area that you could perhaps go to for injections despite the long wait time? I know sometimes our community members travel far and wide for appointments which can definitely add an extra sense of frustration. Thank you for being a part of this community and sharing your experience with us. You're not alone in feeling this frustration and we're really glad you're here to talk about it with us. Sending you warmth, Abby (Team Member).

  4. Thanks, Abby. Do other folks get counseling as part of AMD care or am I asking too much?
    There is nowhere else to go for treatment and only two Specialists in this clinic.

    1. I don't think that's asking for too much at all! A macular degeneration diagnosis can feel really scary and I commend you for being here and reaching out for help. If you haven't done so already, maybe you can try speaking with one of the specialists and ask them if they are aware of any support groups in your area? We also have a great list of general resources which could be a good place to start: https://maculardegeneration.net/mental-health/coping-general-resources, and https://maculardegeneration.net/mental-health/faq. Please know that you have come to the right place to ask all the questions about macular degeneration and we will do the best we can in supporting you to our capacity. Please continue to let us know how you feel and any resources that you're able to get in contact with. Wishing you all the best, Abby (Team Member).

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