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Can anybody tell me the difference between a bleed and an ocular migraine?

Every morning I wake up with what I think is an ocular migraine. I can’t tell the difference between a bleed and an ocular migraine.

  1. That is a great question, , and one that I would for sure ask my specialist if it were happening to me. I'm not sure of the difference between the two, personally, but I did find an article in our database that may be of some help to you while you wait for other community members to respond https://maculardegeneration.net/caregiver/vision-loss-symptoms/. I hate to hear that you're waking up with this every morning and hope that your medical professionals can help you find a way to relieve some of your pain as well as give you some knowledge on the matter. Thank you for reaching out. -Andrea, MacularDegeneration.net Team Member

    1. I have had ocular migraine for many years. Initially, I only had a couple of incidents a year, but in recent months episodes have become much more frequent. I've never had pain with them, and they typically last only a few minutes. If I can I lay down with my eyes closed until they pass. As I also have wet macular degeneration in both eyes with eylea shots every 8 - 12 weeks, I wondered if that has anything to do with the increased episodes of ocular migraine. From everything I read, that doesn't seem to be a trigger. I've had an MRI, and I don't have a brain tumor (a small percentage can have). I had regular migraine with pain, but didn't seem to involve my eyes, as a young woman. Those disappeared in my mid 40's. The ocular migraine episodes started about 10 years ago. My AMD was diagnosed about 5 years ago, with wet in one eye, dry in the other, until earlier this year, with both now being wet. I've had wonderful results with the eylea injections. Hopefully, I will always retain most of my vision. I got my treatments early because I recognized the symptoms right away, as my mom had it. She was actually legally blind the last few years of her life, which didn't slow her down a bit! She did hate having to give up driving and reading her morning paper with coffee! She utilized a number of techniques to mitigate any negative impact it had on her daily life. One of her favorites were the audio books. So I think I'm in a pretty good place so far with my treatment for macular degeneration. Since from all I've read my ocular migraines are more of a nuisance than a serious condition, especially with no pain, I'll just have to figure out what my triggers are to minimize them.

      1. thanks for sharing your experience with both ocular migraines and wet macular degeneration. I know you must be relieved there was no brain tumor and more of a nuisance to deal with. I am happy you are having great results with the Eyelea injections. My sister still has good vision after 10+ years of injections. I hope you figure out your triggers so you can avoid them. Warmly. Sharon Moore patient leader

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