abbyschmidt
How do you feel that macular degeneration impacts your mental health? Do you have any specific coping mechanisms? What tips or advice would you give to others within the community?
Sharon Moore Moderator
abbyschmidt Community Admin
Nick Member
I don't know about the rest of you folks, but being able to clearly see is numero uno on my shopping list. I will do anything I can to see as long as I can, which includes taking eye vitamins that don't fit into my budget. I am always doing research on the web to learn all I can and see if any progress is being made for a permanent solution. I am grateful for this forum...it helps calm a few fears and apprehensions. It is also where I learned about Betadine sensitivity and eye pain for days after the injection.
Sharon Moore Moderator
I have not heard anything about a potential treatment for dry macular degeneration involving an injection other than the eye. Here is a link to one of the clinical trials going on now https://clinicaltrials.gov/ct2/show/NCT03144999
Here is a link to an article on other clinical trials https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8720345/
Best wishes, Sharon Moore Advocate
Brown Eyed Girl Moderator
Nick Member
Thanks Wendy. With help from the injections, my sight remains at 20/25 and the macula is back in the position God created...at least as per Doc Brown. I really wish more was mentioned about the Areds 2. They mention proven clinical studies, but I have yet to find it. We are to take them for their word since there is no FDA certifications.
Brown Eyed Girl Moderator
Nick Member
Thanks for the link...I will read it through. I Have been taking the Areds 2 for the past 3 years, however not the dosage of twice/day as the study was for. I cannot afford them. I have looked into other brands, but since the FDA isn't involved, there is no way to know if you are comparing apples to apples, or to oranges. I am happy to have discovered AMD at the onset and saved my vision...well mostly. I am losing ability to see in low light situations
CommunityMember15 Member
Sharon Moore Moderator
I am glad to hear the injections are working well for you. I mentioned the high cost of AREDS2 vitamins to my retinal specialist. He told me that it would be OK to use the generic version sold by Walmart. It is considerably cheaper than PreserVision. Warm wishes, Sharon Moore patient leader