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MD's Impact on Mental Health

How do you feel that macular degeneration impacts your mental health? Do you have any specific coping mechanisms? What tips or advice would you give to others within the community?

  1. AMD has not had much affect on my mental health. I have occasional bouts of fear about a future that might include central blindness. I believe my strong faith in God and being naturally an optimistic person has helped me cope with AMD. Every story I read from our members that are legally blind and thriving in spite of it encourages me. Sharon Moore advocate

    1. Thanks so much for sharing this Sharon. I love your outlook and how you remain to be optimistic even when things can be really challenging. Grateful for you being a part of this community! Best, Abby (Team Member).

  2. I don't know about the rest of you folks, but being able to clearly see is numero uno on my shopping list. I will do anything I can to see as long as I can, which includes taking eye vitamins that don't fit into my budget. I am always doing research on the web to learn all I can and see if any progress is being made for a permanent solution. I am grateful for this forum...it helps calm a few fears and apprehensions. It is also where I learned about Betadine sensitivity and eye pain for days after the injection.

    1. I have not heard anything about a potential treatment for dry macular degeneration involving an injection other than the eye. Here is a link to one of the clinical trials going on now https://clinicaltrials.gov/ct2/show/NCT03144999
      Here is a link to an article on other clinical trials https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8720345/
      Best wishes, Sharon Moore Advocate

    2. I'm attaching a link to an article I wrote recently about a trials for a new treatment for dry macular degeneration. These trials involve an injection into the eye. I haven't heard of the treatment you are mentioning. If you hear any more, please let us know. Best wishes, Wendy, Advocate. https://maculardegeneration.net/living/treatment-hope-dry-amd

  3. Thanks Wendy. With help from the injections, my sight remains at 20/25 and the macula is back in the position God created...at least as per Doc Brown. I really wish more was mentioned about the Areds 2. They mention proven clinical studies, but I have yet to find it. We are to take them for their word since there is no FDA certifications.

    1. I imagine you are pretty happy about 20/25 visual accuity under the circumstances. I hope it stays this way for you. I'm attaching a link to the clinical trials of the AREDs supplements. In my opinion, it would be good if they could do an updated study soon. I've taken the supplements for about five years. My doctor insists on it. https://www.nei.nih.gov/research/clinical-trials/age-related-eye-disease-studies-aredsareds2 Warm wishes, Wendy, Advocate.

  4. Thanks for the link...I will read it through. I Have been taking the Areds 2 for the past 3 years, however not the dosage of twice/day as the study was for. I cannot afford them. I have looked into other brands, but since the FDA isn't involved, there is no way to know if you are comparing apples to apples, or to oranges. I am happy to have discovered AMD at the onset and saved my vision...well mostly. I am losing ability to see in low light situations

    1. I have been taking Areds2 for a number of years really hard to afford use coupon when I can find one my right eye is wet just got second shot yesterday pain only lasts about a day Medication working really well so far

    2. I am glad to hear the injections are working well for you. I mentioned the high cost of AREDS2 vitamins to my retinal specialist. He told me that it would be OK to use the generic version sold by Walmart. It is considerably cheaper than PreserVision. Warm wishes, Sharon Moore patient leader

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