caret icon Back to all discussions

Help!! Please

I have been told that I have macular degeneration by my doctor when I tell him about my eyes. He said go to your eye doctor. I called made an appointment. Before I go in they called me up to his nurse she asked all the questions. I answered them, she leaves, then comes back in about 5 mins and said sorry the doctor can't help you. I've gone to several doctors and they did not once say anything about my eyes except I'm getting old. I'm 69 the closest ophthalmologist is in Nevada, I live in Kingman, AZ. My world is almost black now except when I'm outside. I really need help any suggestions?

  1. I am so glad you reached out to our community. It can be very scary to find out you have macular degeneration. I suggest you make an appointment with the closest ophthalmologist in your area as soon as possible. They should be able to do the tests to confirm your diagnosis. Most of us see a retinal specialist to monitor and provide treatment as needed. Please do reach out with any questions and let us know how you are doing. Best wishes, Sharon Moore Advocate

    1. I agree with Sharon about your seeing an ophthalmologist as soon as possible, if you can, even if you have to travel. If I were you, I would want to know if I had dry or wet macular degeneration and at what stage it was. I would also discuss lifestyle and diet changes that I could make, and whether AREDs2 supplements would be useful to me. Here is a link to an article on lifestyle changes you might find useful. maculardegeneration.net/lifestyle-changes. Wishing you well and hoping to hear back from you. Wendy, Advocate.

      1. Have made the eye appt and the local guy is not interested in helping me he stated there is nothing I can to help. I take Allreds2 and have been for about a yr.I also muse a blend of Frankincense, Cypress and Helichrysum.. I'm not alone with this my family is always guiding me but I still work and my hubby is retired and is my driver. I have made an appointment with the ophthalmologist 2 hrs away but its a month before I can get in thank you so much for your responses. Will keep trying.

        1. I am sorry to hear your vision problems are making it more difficult to see indoors. Though my retinal specialist says I am stable, like you, everything seems dimmer. I am glad your husband is so supportive. Do update us after you see the doctor in September. Blessings, Sharon Moore Advocate

        2. Thank you I will Blessing to you also

      2. One thought I had is to ask your primary care doctor for a referral. My doctor referred me and it was quite easy as they called me to make the appointment with no questions or comments. I wish you well with your appointment, our eyes are so important and our doctors need to take AMD seriously, mine do, I am so glad.

        1. thanks for chiming in on your experience with the referral process. Our eyes are important and a good retinal specialist is a must. Best wishes, Sharon Moore advocate

        2. I'm so glad to hear that you have a good retinal specialist who takes your diagnosis seriously. Thank you for being a part of our community and sharing your experience with us! Wishing you well. Best, Abby (MacularDegeneration.net Team Member).

      Please read our rules before posting.