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Best Advice You've Received

What's the best advice you've received from an eye care health professional?

Did it feel helpful or comforting in the moment?

Has the advice helped you emotionally cope with your macular degeneration journey?

  1. Always be positive

    1. thank you for sharing this. I think that's always good advice, but sometimes I struggle to feel that way. Mostly I feel positive, but just occasionally worries creep in. Your doctor sounds sensible and caring to give you this advice. Best wishes, Wendy, Patient Leader.

    2. just wanted to pop in to see how you have been managing lately? I hope well. Please know we're here anytime. Sending positive vibes your way. Hugs, Jessica, Team Member

  2. None of the ophtomologists I have seen gave me any advice, diet, exercise, that it develops in stages, no emotional support , in all very disapppointing. GP’s need to be educated about MD not to subscribe medication which is detrimental to MD and so need dentists to be educated.

    1. yes, Inge, I agree that GPs should know/learn more about macular degeneration and especially what is in the AREDS2 supplements that may possibly interact with our other medications or conditions. Can you elaborate on the issue with dentists? Wendy, Patient Leader.

  3. I have been so disappointed with all the different eye doctors I have interacted with about my AMD which was diagnosed about 8-9 years ago. None have really taken the time to explain what I can expect or to offer any helpful advice or further sources of information. This online forum appears to be the only thing remotely related to self-help and I am not at all sure how to best utilize it. Any advice is welcome!

    1. another strategy you can use to navigate our website is to look at the menu headings on the left below Community. The sections starting with "Basics" and those below, are written or checked by medical professionals and contain factual editorial information. Under the Community tab are mostly stories and articles written by fellow Community members. This is where the Forums are that Sharon mentioned. Both of these sets of information/stories are equally useful. Hope this helps you further. Best wishes, Wendy, Patient Leader.

    2. I wanted to check back in with you to see how you are doing. Have you learned how to use the website? If you haven’t already, I encourage you to subscribe to the newsletter Feel free to start a discussion in the forum section. Warmly, Sharon Moore patient leader

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