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My Journey with Wet AMD

Life can change in an instant!

While watching my grandson, I suddenly realized I couldn’t see out of my right eye: I could see light but nothing else. I called my husband and he came home and took me to the hospital thinking I had a stroke, although only 55 y.o, with no other symptoms.

The large bleed was discovered

The ER thought the same as my blood pressure was high. After a battery of tests, they asked if I was OK now? (lol) They were discharging me when another Dr. came in and said he thought I should transfer to another hospital with an ophthalmologist. This is where the large bleed was discovered.

I was blessed with a Dr. who got me an appointment the next day with a wonderful retinologist. He gave me an injection that day and scheduled me for surgery. My vision was seeming to improve when it started bleeding again and another surgery was required. I have some medial scar tissue but can still read 20/30. (Excentric vision).

Blessings and worries

6 months later my other eye needed injections because of abnormal blood vessels and some leakage. It’s been almost 4 years. I’m extremely blessed to have a great doctor who saved my vision.

I continue to need injections in eyes every 5-6 weeks. I’m looking forward to all the advances that will help deliver the medication without needing injections so frequently. I worry about the cost and being able to afford injections after the retirement of my husband.

Thank you for this group and talking with others who understand.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MacularDegeneration.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • pammy5060 author
    5 months ago

    Having an eye disease has been so scary. I took my sight for granted before diagnosis.
    I too, will forever be thankful for my Retinologist. He’s so caring and very knowledgeable. I’m very blessed to live close to his office. Anyway, I could go on and on about how grateful I am.

    What have you heard about new treatments?
    Blessings,
    Pam

  • Andrea Junge moderator
    5 months ago

    @pammy5060, I am personally a firm believer in overall health, body, mind, and soul to help combat this disease (and any disease, really)…until they find something out there that works specificially for me as far as treatments go. We all have similar ailing eyes, but react to treatments and supplements differently and can have such different needs as individuals.

    Stay tuned for some articles about health and nutrition from me in the future! We also have some information here https://maculardegeneration.net/treatment/ for you!

    Happy Thursday to you!

    -Andrea, MacularDegeneration.net Team Member

  • shelby-comito moderator
    5 months ago

    Hi @pammy5060, we hear you! Facing the future with macular degeneration can feel so scary sometimes, but you are not alone. I’m so glad you have the support of a great doctor nearby.

    Here’s some information on current research and investigational therapies: https://maculardegeneration.net/investigational-therapies/ And we’ll continue to keep the community posted as new treatments and research unfold.

    Thank you for being here and sharing your experience! – Shelby, MacularDegeneration.net Team Member

  • Andrea Junge moderator
    5 months ago

    Thank you for sharing your story, @pammy5060! What a scary way to notice such a big vision change! And, what a blessing your doctor was and is to you! I love my doctors and could never repay them for all they have done for me. I am also patiently waiting for more advancements in treatments and things are definitely looking hopeful. So glad you’re a part of our group.
    -Andrea, MacularDegeneration.net Team Member

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