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My Macular Degeneration

I was diagnosed 5 years ago with Dry AMD. Since then to now, my vision has worsened from 20/15 to now of 20/70 left eye and right eye to 20/200 -3. My husband does the driving, I am nervous to drive. It’s affected my husband where he is watching me that I don’t trip over curbs and steps, being my eyes looking at medication containers and more, holding my arm or hand when walking.

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Comments

  • SLH1
    4 months ago

    Hi, sounds as if you have much anxiety over your vision loss. Your husband too.
    I think the best way to get pass that anxiety is to try and maintain as much independence as possible. May I suggest looking into any organizations that might be within your area for workshops on visionally impaired people.
    For example, I live in Chicago and we have, The Lighthouse for the Blind. They will often have workshops or visionally impaired equipment / tools, magnification for working around the kitchen and office. Many times, these organizations will come out to your home. They can give advice on how to protect yourself within your own home.
    There are some who offer transportation to appointments and shopping so you don’t always need to rely on your husband. Florida has a service called, Passport for free rides.
    The point is you might feel more confidant and therefore less anxious if you can find ways to stay active.
    Most states do have a list of these organizations. Perhaps start with your local ward office or city hall or just google visionally impaired services near me. Good luck💙

  • Andrea Junge moderator
    4 months ago

    This is AMAZING advice! Thanks for sharing your knowledge, @slh1!

    -Andrea, MacularDegeneration.net Team Member

  • shelby-comito moderator
    5 months ago

    Thank you so much for taking the time to share a bit of your story, Cute0460! Dealing with declining vision can feel so scary, and you are certainly not alone here. I’m so glad you have your husband there to support you – it sounds like he cares for you so much! Thank you again for taking the time to share. We’re grateful to have you in our community!
    – Shelby, MacularDegeneration.net Team Member

  • Andrea Junge moderator
    5 months ago

    @cute0460, I am nervous as well with vision changes that can often feel so scary. Your husband seems like such a big help to you! We are so glad you are here with us, please let us know if we can help as well.
    -Andrea, MacularDegeneration Team Member

  • Cute0460 author
    5 months ago

    Thank you my husband is a blessing and yes I will ask for help if needed.😊

  • Andrea Junge moderator
    5 months ago

    That is so great! We all need help sometimes.

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