My Diagnosis Story: WendyTen years ago, I was diagnosed with dry age-related macular degeneration (AMD) by my optometrist. I was about 60 at the time. At this memorable visit, the optometrist advised me...Reactions0reactionsComments19 comments
My Diagnosis Story: LindaIt's my 10-year anniversary with macular degeneration! It’s hard to believe it’s been over 10 years since I was diagnosed with age-related macular degeneration (AMD). There have been many highs...Reactions0reactionsComments0 comments
Ask the Health Leader: Our Best AdviceWe asked our Health Leaders what they wish someone had told them when they were first diagnosed. After looking back on their journeys, they offered their best advice. My advice...Reactions0reactionsComments11 comments
Haven't I Been Lucky?When I was diagnosed in 2019, the word "lucky" never entered my mind. I am sure my first thoughts were, “Why me” and “Now what”, among other seemingly other doomsday...Reactions0reactionsComments7 comments
Tips for Starting an In-Person Support GroupAre you interested in starting a support group? Figuring out how to begin may feel daunting. It may take you outside of your comfort zone. But anyone can step in...Reactions0reactionsComments1 comments
Dry Macular Degeneration is the Good Kind... Wrong!I am no stranger to age-related macular degeneration (AMD). When I was diagnosed 8 years ago, my mom and sister remarked how lucky I was to have the dry form...Reactions0reactionsComments23 comments
Colored PaperI was diagnosed with myopic macular degeneration (MMD) in 2019. That was the beginning of my new way of living. I began learning about life living with this disease. Early...Reactions0reactionsComments0 comments
Is Macular Degeneration Holding You Back?Or is it something else? Before retirement, I never seemed to have enough time to do everything I wanted. There was always some fun or interesting activity I just couldn’t...Reactions0reactionsComments0 comments
Monet & Macular DegenerationThe famous Impressionist artist, Monet, had serious vision challenges, yet he created masterpieces from what he saw. Following is an excerpt from a poem written about his challenges, which he...Reactions0reactionsComments5 comments
Our Five SensesWhile our 5 senses work independently, they ultimately collaborate to help us understand and navigate the world. When some of your senses are impaired, it's easier to notice how your...Reactions0reactionsComments0 comments
Ask the Health Leader: It's Not Always Easy to Ask for HelpWhether it's the support of loved ones or encouragement from online support groups like this one, asking for help is difficult for many of us. We feel like we should...Reactions0reactionsComments4 comments
No Longer Stable – What’s Next?I was diagnosed with early dry age-related macular degeneration (AMD) at age 66. It didn’t come as a big surprise since both my Mom and sister had wet macular degeneration...Reactions0reactionsComments31 comments
Driving BlindMy good buddy Jodi took me to Wills Eye Hospital in Philly Tuesday. No worries. It was a good thing and, even though I have not written that page yet...Reactions0reactionsComments2 comments
Learning to See Through ArtMost evenings you will find me wrapped up in my latest art project. This is the highlight of my day, this time revolves around drawing, painting, sketching, or coloring. During...Reactions0reactionsComments9 comments
Audio Description of Live Theater PerformancesA free visit to a live theater production wasn’t on my radar, but it happened recently. Not only was it free, but I was driven into the city and home...Reactions0reactionsComments0 comments
It’s the Little Things in LifeOn January 26th, I had 2 surgical procedures on my foot. My podiatrist did everything possible to prepare me for post-procedure rehabilitation. He repeatedly stressed that I would be non-weight...Reactions0reactionsComments13 comments
The Eyes Are the Windows to the SoulThe source of this quote is often attributed to Shakespeare, Da Vinci, the philosopher Cicero, or even the Bible. No matter what brilliant person said it, the sentiments are so...Reactions0reactionsComments3 comments
A Second Opinion on My Macular Degeneration"Why am I looking for another retinal specialist when I have a perfectly good one already?" I asked myself this question recently on a bus into the city. It was...Reactions0reactionsComments13 comments
What Does Syfovre Mean for You?February 12, 2016, 7 years ago, I was diagnosed as legally blind. While the words were not these, to me, the sentiment was the same: “You have advanced, dry age-related...Reactions0reactionsComments12 comments
Thought Distortions Make Macular Degeneration HarderThought distortions make macular degeneration harder. If you think at all, you have developed thought distortions. Some are minor annoyances while others are far more serious that interfere with daily...Reactions0reactionsComments0 comments