My First Eylea InjectionYesterday as I was sitting in the waiting room at my retina specialist’s office, anxiously awaiting my turn for Optical Coherence Tomography (OCT) pictures, I kept thinking, hoping that this... By Cora Lyn Sears2 min readBookmark for later Reactions 0 reactions Comments1 comments
My Art and Macular DegenerationI have talked about my somewhat newfound obsession with art often. The opportunity to create new art appeared in my life after my husband and I retired over 8 years... By Debbie Havens2 min readBookmark for later Reactions 0 reactions Comments0 comments
Using Smart Speakers With Low VisionI have had dry age-related macular degeneration (AMD) for 7 years now. As it has progressed to the intermediate stage, I am finding it more difficult to cook, watch television... By Sharon Moore2 min readBookmark for later Reactions 0 reactions Comments2 comments
Confessions of a Macular Degeneration Diagnosis: Helping OthersIn life, there are moments that change things forever. At any time, something can happen that makes you realize that nothing will ever be the same. These moments divide time... By Andrea Junge4 min readBookmark for later Reactions 0 reactions Comments1 comments
Traveling With Macular DegenerationThere are many places I’ve wanted to visit, sites I’ve wanted to see, and things I had planned for my retirement. Some I have managed to do, others were put... By Cora Lyn Sears2 min readBookmark for later Reactions 0 reactions Comments0 comments
Disease Fatigue and Macular DegenerationYes, disease fatigue. I think that I just made up a new condition. Just did a search and it wasn’t there. Chronic fatigue syndrome? Of course, and a bunch of... By Beverly Dame3 min readBookmark for later Reactions 0 reactions Comments2 comments
Know When to Get A Second OpinionAfter being diagnosed with macular degeneration in 2021, Claire made the hard but necessary decision to get a second opinion and is very grateful today that she did. Claire is... By Linda Hoopes3 min readBookmark for later Reactions 0 reactions Comments0 comments
Chasing SunsetsOur summer days are so much different now than when we were a busy household of 6, raising 4 kids. In those days, the end of school days for the... By Debbie Havens2 min readBookmark for later Reactions 0 reactions Comments0 comments
Jury DutyI sent in my request for an absentee ballot at the beginning of the week. In Pennsylvania, this is standard practice. I have to renew my request annually. This makes... By Sue LaBar Yohey3 min readBookmark for later Reactions 0 reactions Comments0 comments
The Elephant in the Room: Charles Bonnet SyndromeIf only we'd known about Charles Bonnet Syndrome (CBS) before my mother developed it. It snuck up on our family quickly and without warning. If we’d known it could be... By Brown Eyed Girl3 min readBookmark for later Reactions 0 reactions Comments1 comments
Eating for Eye Health, Even on Our Busy DaysI don’t know how, but summertime always feels busier than when I’m working full time during the school year. It’s a phenomenon that I haven’t yet been able to completely... By Andrea Junge3 min readBookmark for later Reactions 0 reactions Comments2 comments
Switching Anti-VEGF InjectionsYippee! I’m switching to Eylea for my next injection. I’ve read that some people can be helped by a change. When one thing stops working, you try something else. At... By Cora Lyn Sears2 min readBookmark for later Reactions 0 reactions Comments4 comments
My Diabolical Plan: Stem Cell Transplant for Dry AMDIf you listen to the news, you know everything in the world right now is not rosy. Far from it. But for those of us with dry macular degeneration (AMD)... By Sue LaBar Yohey3 min readBookmark for later Reactions 0 reactions Comments1 comments
Do You See What I See? Understanding the Challenges of Low Vision“Jack Sprat could eat no fat,” my husband says as I turn up the light over our dining table. “And his wife could eat no lean,” I reply. It has... By Beverly Dame2 min readBookmark for later Reactions 0 reactions Comments0 comments
Enjoying Summer, Celebrating StabilityIt is amazing how it is already summer, it seems like just yesterday the new year started. Hearing the phrase “2022” sounded so futuristic and now it's just another number... By Debbie Havens2 min readBookmark for later Reactions 0 reactions Comments3 comments
Community Views: Post-Injection Pain and Coping MethodsWe recently asked community members about their post-injection coping methods. This question generated over 200 comments. Comments about the pain following injections varied from “every injection is extremely painful” to... By Sharon Moore2 min readBookmark for later Reactions 0 reactions Comments9 comments
My Contacts Are in the Wrong Eyes and I Like Them That WayI know this may sound a little crazy... but I seriously accidentally switched my contacts one day. They're still not in the correct eyes because... I think I see better... By Andrea Junge3 min readBookmark for later Reactions 0 reactions Comments0 comments
Mindfulness: Wet or Dry, We Need R.A.I.N in Our ForecastSpringtime in Indiana is usually pretty soggy and this spring was no exception. The last thing I thought I needed was more rain. However, that’s exactly what I DID need... By Linda Hoopes3 min readBookmark for later Reactions 0 reactions Comments6 comments
Keeping Track of Appointment NotesThere’s a lot to be done after your doctor’s visit. That’s the way I look at it, anyway. Most of us have heard suggestions about how to prepare for our... By Brown Eyed Girl3 min readBookmark for later Reactions 0 reactions Comments4 comments
Easy and Affordable Magnification TipsA distressing aspect of age-related macular degeneration (AMD) is that it is progressive. You think you have everything in hand, accommodations match your skills, and – oops! – suddenly, everything... By Sue LaBar Yohey3 min readBookmark for later Reactions 0 reactions Comments1 comments
