Wake Up Call Moments with MD
Have you had "wake-up call" moments that showed you your limitations with macular degeneration? (For example: driving at night feeling uncomfortable, a fall you've taken).
Share your experiences below to help others in the community feel seen and heard.
Thanks for this post - This sounded very familiar to me! Last Spring I decided to stop driving at night. The event that brought on this decision: I was driving on a higher speed (50mph) 2 lane road near my home....in light rain. There were many bright lights coming towards me in the opposite direction and many cars in front of me with red rear lights on. It was hard to avoid the disorientation the oncoming headlights caused, and it was hard to tell how close the cars in front actually were. At one point I braked hard, thinking I was too close to the car in front of me....turns out, it was not as close as I thought. Whew! That was the incident that led me to my decision not to drive at night. I have, on occasion had to, and it's been OK. Now that it gets darker here around 4:30, I find this quite limiting to say the least.
I know how scary seeing the bright lights and taillights all at once in the nighttime can be - especially when it's raining! Some members in the community do say that night vision glasses can help them with driving at night, but those of course can only take you so far. Finding your limitations within the condition is so important and I'm glad to hear that you've created boundaries for yourself to feel safe. Thank you for sharing your experience and continuing to be a part of this community. We're grateful to have you. Sending you warmth and love! Best, Abby (Team Member).
Thanks, Abby! Besides my retinal specialist, I had been seeing an ophthalmologist for all the rest. However, recently I've started seeing an optometrist. After reading an article in the last month or so...I think on this site....it mentioned 'low-vision' optometrists who could help more with vision aids for patients, depending on what specific activities they still tried to enjoy. I asked about that in the Ophthalmology Dept of the medical center where I have all these visits. My current optometrist said that wasn't her specialty, but recommended an associate at the medical center who does do that. So I'm looking forward to getting an appt with her after the holidays😀
I am glad to hear you are planning to see a low vision specialist. Other community members have mentioned how helpful they can be. I hope you will give us an update after your visit. Best wishes, Sharon Moore advocate
