Seeing Things That Aren’t There?
If you are seeing things that aren’t there and have macular degeneration, you might be experiencing Charles Bonnet Syndrome! A recently published article, “The Elephant In The Room: Charles Bonnet Syndrome,” explains how this could happen. Have you ever had this experience or know someone who has?
I don't see things that aren't there - "yet". However I do on occasion, perceive things that are there as something else.
that's an interesting reply, although to you I'm sure it's more annoying than interesting. I hope you never develop Charles Bonnet Syndrome. It's fairly uncommon and certainly not something that happens to everyone with sight loss. At least if it does happen to you, or someone you know, you are aware of it now and won't be worried that there is something "wrong with your brain." Best wishes, Wendy, Patient Leader.
I hope it's nothing like Charles Boyer Syndrome.
with macular degeneration I think many of us have trouble making out objects from time-to-time. My mother saw things like people dancing in the halls, and children outside her window. If you are worried about it at all, you could mention it to your specialist at your next visit. Best wishes, Wendy, Patient Leader.
I often awaken and see some kind of splatter blob in my visual field. Reading up, knew what it was so tried to implant beautiful things in my brain so I was t watching bloody news stories, etc. especially before bedtime.
I love art, good films, music, etc., so spend part of my day looking at or experiencing the above. It’s helped with a Bonnet symptoms as has simply ‘knowing what it is’ and getting up, moving around to stop the effect. Can be frightening, but part of disease.thanks for sharing your strategy. It sounds like a good way to get your mind focussed on beautiful things that are meaningful to you. Were you diagnosed with Charles Bonnet Syndrome? Wendy, Patient Leader.
Yes. But my Dr simply agreed with me. No furnal diagnosis necessary~
apparently it is difficult to make a formal diagnosis of Charles Bonnet Syndrome because there are so many other issues with our eyes that can cause us to see things "differently." I see blotches on my bedroom walls when I wake up for just a few seconds, and I don't have CBS. I think that it is just my eyes, with macular degeneration, adjusting to the light. It sounds as though your doctor is happy with the way you are coping, as everyone has to find their own methods. You seem to have done that. Warm wishes to you, Wendy, Patient Leader.
