Legally Blind One Eye
I did not understand macular edema is actually wet amd. My eye was left untreated for too long apparently - although I was told prn by my RA I thought all was ok but went too long. I started noticing changes (central vision blurry) and made appt with optometrist - she quickly made an appt with new, closer RA - I was told at the first appt of 20/200 sight. A long drawn out question -- I am already legally blind. What good can injections do for this? If it progresses - to what? Just wondering if I am wasting my time with injections. I can see fine but I cannot read - letters jumbled and distorted.
My other eye is dry and has been since 2017. I will keep taking the vitamins for that since nothing else can be done. Any thoughts will be appreciated.
I feel for you and the situation you find yourself in. Whether or not the injections can improve your vision in your wet eye is definitely a medical question. I wouldn't like to influence you either way, because I'm not a medical professional, but I did notice that someone in our community recently mentioned they eventually saw an improvement after three years of injections. They could be in a completely different situation than you. Did your retina specialist say that your vision in the wet eye could possibly improve? Wendy, Patient Leader. Thank you so much for your thoughts and kindness. Yes, it is definitely a medical question and I will certainly address it - I was just wondering what other's experience may have been.
I take very good care of myself - my health - the fact that this got by me boggles my mind. Not to mention how quickly it all came together - the blurriness and then the diagnosis. Thank you again for your thoughts. I will post when I learn more from the doc.
Best wishes to you for your ongoing battle with this nasty disease.you are more than welcome to ask about others' experiences. That's what we're here for. I just have to be careful not to say anything that could be construed as medical advice 😀 We are all different, but it does help to know about the wider range of experiences to further our knowledge. I hope other community members will share their experiences with you. I will be interested to hear what your doctor has to say. Wendy, Patient Leader.
P.S. Doc did say after 2nd injection my situation was responding well to the Eyelea. So we shall see.
that's great to hear! Mine said the same thing to me, so here's hoping for good results for both of us. Just wondering if you use an Amsler Grid to keep track of your other eye between appointments. Wendy, Patient Leader.
Hello Brown Eyed Girl -- have a question for you. You have one eye that went from dry to wet just recently. If you close your good eye, can you still read with the wet eye? Since you caught it before it did any damage to your retina, I'm hoping that's the case. Also, do you have amd in the other eye?
I knew without the Amsler that my eye was in trouble. All I had to do was close my good eye and the story presented itself. I look at the AG now and have not seen anything change on that. Lines not wavy -
Thanks again for your thoughts and yes, good luck to both of us and anyone else suffering from this disease.this is a good question and it made me sit up and think. I can best explain it this way. I have dry amd in both eyes; have had it for more than ten years. Any abnomolies in my sight are caused by my dry amd. Using the left eye only, I see a bump in any straight lines, and where that bump is, it is almost impossible to read any writing. I have to look to the right of the words to try to read them with left eye only. Using both eyes compensates for this and I read OK. Using right eye only, there are tiny little missing circular blobs. If I look at a mobile phone keypad, one or two of the numbers are missing. This, too, is compensated for if I use both eyes. Now, as far as the wet amd is concerned, all I noticed before I went back to the doctor was a very pale grey circular shadow over the middle of the Amsler Grid. It persisted even in good light. It was so pale, that I tried to talk myself out of worrying about it. But that was the sign of the wet developing. You are right, that the shadow went away after my first injection, and as far as I know, there has been no damage what-so-ever from the wet. But the dry problems remain. I hope this explains it. I'm glad to have sorted that out in my own mind, too. Warmly, Wendy, Patient Leader.
