caret icon Back to all discussions

How long with dry until it became wet

What is the longest some of you went with dry before it became wet. Just thinking about my future.

  1. my dry macular degeneration was diagnosed about 11 years ago now. I was at high risk of it turning wet because both of my parents had it. One eye has just turned wet and I've had three injections. I took the AREDS2 supplements for most of that time. Wendy, Patient Leader.

    1. chet51 My dry macular degeneration was diagnosed 10 years ago in both eyes. Both my parents had dry AMD, and to my knowledge it didn't develop into wet AMD for either of them. In September of 2019, just before I was to get the cataract removed in my left eye, that eye turned to the wet kind. Since my initial diagnosis in 2014, that was about 5 years later. Unfortunately, I didn't advise my opthalmologist at the time, as I thought I was experiencing symptoms of the dry kind. Along with lines jumping, I eventually noticed a gray circle moving around with that left eye, so I realized more was going on, but by the end of September the damage to my central vision had already occurred. Fast forward to April, 2024, I started noticing subtle changes on the Amsler Grid with my right eye. Lines were consistently moving horizontally and vertically. About a week later, I started seeing doorframes and poles and trees bending, which continued until I noticed that I was having trouble reading the font on my phone and had to increase it to the maximum. I must have called my Retinologist's office at least 5 times from April 12 until May 24. That May day it was discovered, after their tests, that a blood vessel had begun to leak in my right eye, and I was referred to a Retinologist in another city, due to my long-time doctor being on vacation. After an injection in my right eye on May 29, poles and doorframes stopped bending and my eyesight began to return to better sight. It is interesting to me that my right eye didn't progress to the wet kind until almost 5 years after the left eye's progression! When I asked the doctor about that, she said: "Have you been taking your eye vitamins?" To which I answered a resounding "Yes!" The good news for most folks with dry AMD is that only 10% of us will develop the wet kind. I've also read that IF a person has wet AMD in one eye there is an 87.6% chance that they will develop it in the other eye. With that knowledge I was determined to make sure I checked the Amsler Grid weekly, sometimes daily, and that I contacted my Retinologist's office whenever there was a change in my eyesight (like the doorframes/poles bending!, as well as the need to increase the font on my phone!) I shared in an earlier message that it is challenging to know the difference in the dry vs. wet symptoms and progression. What really made the difference for me was my interaction with the Amsler Grid, as well as the other signs I noticed that kept me vigilant. With that said, I am VERY thankful to receive the injections that help keep the wet AMD from getting worse in both of my eyes!

      1. I was diagnosed with wet AMD in one eye and dry in the other eye 15 years ago. The second eye turned to wet AMD Last May. I am 83 years old. I take the AREDS2 faithfully. So I am quite happy with the way things are going so far.

        1. thanks for commenting. That's quite a distance between diagnosis of wet in the first and second eye. I was diagnosed with dry in both eyes ten years ago, and one eye has just developed wet. I take the AREDS2 faithfully as well. How are you coping with your shots? Are they holding your vision steady? Wendy, Patient Leader.

      Please read our rules before posting.