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Foveomacular Vitelliform Dystrophy

Is there anyone on this forum that has been diagnosed with adult onset foveomacular vitelliform dystrophy?
I recently went to a retina specialist and apparently that's what i have. I was under the impression i had dry AMD, but this is a "cousin".
I'd be interested to know your symptoms and treatment if any.
I was diagnosed with the beginnings of AMD 18 yrs ago but this is the first I've heard of AOFVD.

  1. I'm sure I've heard of a Community member mentioning something similar. I'll see if I can find it for you. Wendy, Patient Leader.

    1. I found this comment on our Forums. The community member @Jacque mentions vitelliform dystrophy. https://maculardegeneration.net/stories/long-strange-trip You could reply to them using this link if you wish. I hope they have something in common with you with regard to your condition. Best wishes, Wendy, Patient Leader.

      1. Yes the AREDS2 supplement is recommended. I have taken it for probably 15 years at least plus some other eye supplements. The RS said it could turn to wet so I'm keeping a close watch on vision changes. My brother has wet in both eyes.

      2. is your brother coping ok? I worry about mine going to wet in both eyes. Do you both see the same specialist? Wendy, Patient Leader.

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