Legally Blind?

My internationally renowned ophthalmologist told me I would go blind, and there was no cure--but possibly slowing that. My retina specialist was the regional director for Lucentis. He didn't promise anything, but I had seen both of my parents classified as "legally blind" from double wet-AMD. They couldn't read, they couldn't dial menus on phones; they couldn't make out much on TV, etc., etc.

Responding quickly to treatment

I got three injections after I was classified worse than 20/20; and as a fast responder, I was on TV on June 30, 2006 when the FDA approved Lucentis for official treatment for wet-AMD. One of my sons went to an eye specialist after that and mentioned his dad had wet-AMD. The "specialist," commiserated, "There's not much they can do for that." My son said, "Well, yes, there is!"

Avoid generalizations

I guess my point here is to avoid categorical statements whether it says you won't go blind or the degree of blindness. But optimism and hope for invaluable as new discoveries come about all the time. And in my own lifetime, I see well in both eyes and read and see TV and pursue my profession as a professional writer.

That's 16 years after my first injection. Well, I've written reams on my story and served as a "patient information" ambassador to just share anecdotally what I have experienced. So maybe this is enough of my story for now.

By providing your email address, you are agreeing to our privacy policy.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MacularDegeneration.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.

Community Poll

Do you rely on food and nutrition to slow down the progression of MD?