Finding Joy When You Think There Is No Joy

Last updated: March 2022

I have had AMD since 2011. I am an artist, needless to say after my diagnosis, I felt so sad and blue. During my first injection, I thought I would faint, or throw up, but after it was finished I thought well that was not too bad.

Injection appointments

I must say, I get tired of going to get a poke in the eye every 4 weeks, but at least I could see. I thought this won't be too bad. I have had injections of three different kinds of medicine, now I am getting Lucentis injections. It was changed because the other two stopped working. We moved in 2019 to Texas to be closer to a daughter. I started seeing a new doctor and he thought Lucentis would be a better type of med for me.

My eye seemed to respond very well, the fluid was getting less, but still had to have an injection every 4 weeks. In 2021 my right eye, my good eye developed wet AMD. Now I am having problems, I see double, just a shadow of the image, but very disturbing, and can't read lines very well because some of the print is missing.

Leaning into possibility

I am 84, well almost, my birthday is in May. I take care of my husband who will be 90 in June, he has mid-stage Alzheimers. I pray I will have another 10 yrs to take care of him.

I still paint, love oil painting and watercolor, but it is difficult to focus but I find I don't have to squint, it is automatic. Funny but sad at the same time. I guess I will have to paint loose and larger. I try to find humor in things and not dwell on the possibilities that may be. I pray every day that God will lead me to a successful treatment that will carry me through the years ahead.

Hoping my doctors can help

I am praying my doctor will be able to treat me successfully to get rid of the double vision, I can say it has been difficult adjusting, but until now it was OK I could deal with it. I may have to start wearing a pirate's patch, well it could be rhinestones and purple because I am 84 and can wear purple.

God help the scientists find a better treatment for those of us dealing with AMD. Amen.

By providing your email address, you are agreeing to our privacy policy.

More on this topic

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

or create an account to comment.

Community Poll

Is diet a big part of your MD journey?