Last updated: September 2022
I am always changing. As a newborn, I was helpless and defenseless. Time moves on. I grow each year, gaining independence and confidence, and becoming the person I was meant to be. Constantly changing, evolving along the journey.
As an adult now living with macular myopic degeneration, these changes are still in motion. Early on in the diagnosis, I observed subtle changes, wavy images, and smeary views in my vision... each alerting me to this new chapter in my book. Changes were unanticipated but quickly addressed. I made necessary changes of my own to try to stop or at least slow this process down.
Even as an adult, I find change difficult at times. There is a certain sense of peace in knowing things are moving along as they were, with no wild turns in the road ahead. Knowing that the world is as it was and that I am doing well in that world is enough for me.
Changes in one's health when getting older throws everything into a tailspin. The peace and contentment are gone, and the worries fill up more space in your brain; all underlined with the biggest worry of all: the unknown. If only there was a crystal ball that really worked to show the future. There would be no worries, right?
But alas, the reality is there is no crystal ball, no method to know just exactly what lies ahead. The future’s unknown path is set out before us, whether we are ready or not.
These challenges with degeneration bring out a very different direction; one filled with questions about living with this diagnosis. How far will this vision loss go? Will it affect both eyes, and will there come a time when these injections no longer help? Will living independently still be an option? What will other people think? Will there be help in my day-to-day life?
This new reality is filled with a whole lot of unknown pieces to the puzzle of living with macular degeneration.
Accepting uncertainty with macular degeneration
In my own “puzzle of life” there came a moment of acceptance of sorts. In acknowledging this new direction I have found the biggest piece of my puzzle. Living with macular degeneration sure was not something I had signed up for.
By accepting the diagnosis and placing this piece smack dab in the center of my life puzzle, I am able to build upon it. Each new piece that I add to this puzzle lays out my future direction, taking away some of the fear of the unknown.
Faithfully going to my retinal specialist appointments every 6 to 8 weeks for continued monitoring ensures that any digression is addressed and handled with an injection if it is needed. Carefully protecting my eyes with sunglasses and or hats to safeguard against any harmful UV rays is another piece in that puzzle. A good healthy diet and a bit of exercise adds to this picture of health, in my puzzle of life.
While I can not claim to predict the future, I can say that I have a better understanding of the direction I am going and the life that I will be living with macular myopic degeneration.
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