My AMD Story

Join the conversation

1. 

   Sharon Moore Moderator

   <p><inline-mention username="CommunityMember285" user-id="4730576"/> thank you for sharing your experience with macular degeneration. It’s very sad to read about your mother‘s case and those things she was forced to give up. It sounds like you’re living accommodations are perfect in the event that you should need some assistance. I see a retinal specialist every 4 to 6 months to monitor my dry AMD. Both my mother and sister developed wet AMD. I use an Amsler grid to monitor for changes in my vision. I have attached a link in case you are interested in checking out the Amsler grid https://www.specialtyeyeinstitute.com/services/retina-care/free-amsler-grid/<br/>Warm wishes, Sharon Moore Advocate</p>

   reactions

   reply
2. 

   Brown Eyed Girl Moderator

   <p><inline-mention username="CommunityMember285" user-id="4730576"/> I agree with your approach of planning and taking steps to remain independent. I also agree that we need to have some things in place before we actually need them. I have intermediate dry macular degeneration, and my mother developed the advanced type. I, like you, have first-hand knowledge of what activities became difficult for her to do. Luckily we have better technology to help us now. Warm wishes, Wendy, Advocate.</p>

   reactions

   reply