Just Keep Hoping...

By lynnduke

1 min read

I have had both wet and dry macular degeneration for a number of years (don't really remember how many!)

I've had injections for the wet AMD in my right eye, and it's holding its own so far. But my left eye is worse because of dry AMD, which has now progressed to geographic atrophy. I pray that my right eye holds on, and I also pray that something comes along from the current research to stop the GA in my left eye.

I do my hobbies: I love to do puzzles, I love to read, I enjoy everything as I always have. I am about halfway through a ship model (complete with rigging, etc.), and I knit. I have a magnifier light to use when my regular glasses just aren't enough.

Stay positive, group! There is so much research, so many new things that are being studied! If not in my time, I hope my children will not have to go through AMD at all. (I'm 76.) (In passing, I wish my mother, who had wet AMD pre-anti-VEGF injections, had been as lucky as I am so far.)

What is your AMD story?

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Sharon Moore Moderator
<inline-mention username="lynnduke" user-id="3139187"/> Thank you for sharing your story with the community. I am sorry that the dry eye has progressed to geographic atrophy. I hope the eye with wet macular degeneration continues to hold its own. I was very encouraged to read you still continue your hobbies in spite of low vision. Like you, I continue to hope for a new treatment if not a cure in my lifetime. My son has early stage dry macular degeneration and I especially hope a treatment for dry AMD is found soon for him. Wishes, Sharon Moore Advocate
lynnduke Member
Thanks for your support! I hope for your son's sake (and for all of us with GA) that research will provide some alternatives soon. Fingers crossed!
1. Sharon Moore Moderator
 <inline-mention username="lynnduke" user-id="3139187"/> it had been over a year since your last post. You and all us with GA were hoping for a treatment. You are probably aware there is now 2 injectable medications approved to treat GA. I am hopeful my doctor will start me on treatment in November. It can’t reverse the vision loss but may slow the progression. How is your vision holding? Regards, Sharon Moore patient leader
lynnduke Member
Thanks for asking! My vision is deteriorating in the "dry" eye, to the point where reading with that eye is a challenge. So far the "wet" eye is holding its own. I really hope that one of the two meds will be OK for me. The first one had some side effects that made my ophthalmologist very leery of using it. I hope this second one is the key for me and for many of us who have GA.
1. Sharon Moore Moderator
 <inline-mention username="lynnduke" user-id="3139187"/> thank you for sharing an update with us. So sorry to hear that your dry eye has gotten worse. When will you go back to the doctor to find out if you are a candidate for Izervay? Do keep us posted if you were able to start treatment with the new medication. Warm wishes, Sharon Moore, patient leader.