Wet Macular Degeneration Eye Injections & Reactions

By Sharon Hume

1 min read

As of yesterday 8/30/22, I have had 8 injections.

Each time I suffer excruciating pain, to put it mildly. It makes me crazy and I would rate in a 10+ on the pain scale. At first, the doctor thought betadine and so did I and she reduced the amount she used. I did a little research and found or think I did, not the betadine but the Avastin so yesterday we tried Eylea.

I had high hopes, but no, still the same. I know all the questions that will be asked and will address the procedure, and yes all was done according to protocol. The washing of the eye before and after etc.

My RS is at the top of the practice and I have complete confidence in her. I just think I am one of the few that has reactions. The only thing that helps a little is pain pills, (prescribed by pain management), and I thank God I have those.

Today the eye is red and tender, but the pain is gone. I'm using eye drops often and also bacitracin ointment was applied before leaving the office and also at home. It was a little soothing but doesn't stop the pain.

Sincerely,
Sharon Hume, Goodyear, AZ

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Sharon Moore Moderator
Sharon thanks for sharing your painful reaction to injections. It sounds like you have a good retinal specialist to help you sort it out. I hope he comes up with a protocol to spare you so much pain. Warm wishes, Sharon Moore Patient Leader
Sharon Hume Member
Thank you so much. I feel the Eylea was even more of a reaction than Avastin. But I will leave it up to my lady Dr to decide the best treatment for me. Sharon Hume
1. Brown Eyed Girl Moderator
 <inline-mention username="Sharon Hume" user-id="4554906"/> I want to wish you all the best for your next injection. Please let us know how you go. I'm sorry that you've suffered, but I'm glad you have a doctor who you trust. She sounds open to trying new things to help you. Warm wishes, Wendy, Patient Leader.
Sharon Hume Member
To add to my story, it just proves that pain is in the moment relevant and when it's gone, it's gone! So, the day after I reported that all was well (Aug. 31, 2022) but it wasn't. As I was getting into my day my eye was very sensitive to light and it started burning and stinging! I applied more drops and Bacitracin again. Today, the 2nd of September the seems to have calmed down a lot but still bloodshot and tender. Still sensitive to light but not as much as the past two days. My next injection will be October 18, 2022, which I'm already dreading but it's all about keeping my eyesight. Yours Truly, Sharon Hume
1. Brown Eyed Girl Moderator
 <inline-mention username="Sharon Hume" user-id="4554906"/> it sounds like a roller coaster for you. As you say, the main aim is to keep your sight, but I hope your doctor can work out what is happening. At least she is trying to sort it out. I hope she is successful so that you don't have to keep going through this. Warm wishes, Wendy, Patient Leader.
Sharon Hume Member
Thank you so much, it means a lot. Sharon Hume
1. Sharon Hume Member
 <inline-mention username="Brown Eyed Girl" user-id="3141081"/> Thanks for your concern. I will report on the 18th of Oct. I do get a good rinse and I also get a tiny drop of Betadine on a swab (Q-Tip), doesn't seem to help. Sharon Hume
2. Brown Eyed Girl Moderator
 <inline-mention username="Sharon Hume" user-id="4554906"/> they're both good strategies. Look forward to hearing back from you. All the best. Wendy, Patient Leader.
CommunityMember64 Member
i was injected with beovu by a opthamologist even thou i wasnt having any sight problems--he said a scan showed i had M <a href='http://D.---after' target='_blank' rel='noopener noreferrer ugc'>D.---after</a> the second injection i woke up the next morning feeling like my eye was on fire--i went straight to his office and the doctor said it would clear up in a couple of days--well 2 years later my vision in that eye is like i am under water--i found out later that had recommended by several hospitals to be taken off the market-i tried to contact novartis about compensation with and att. but they said it wasnt their problem--found out later on internet that many people have the same problem-check it out-i am only 54 years old and i lost my truck driving job because i failed the eye test---you cant make this up bot the f d a gave beovu a top rating---what a joke
1. abbyschmidt Community Admin
 <inline-mention username="CommunityMember64" user-id="4665141"/> I'm so sorry that you've experienced this. How are you feeling today? Sending all my best, Abby (Team Member).
Sharon Hume Member
Oh my God, I am so sorry! I will try to remember this medications name. I don't think I will be getting this at least pray not! You should see a professional about this situation, like a lawyer!! Sharon Hume
Sharon Hume Member
Thank you for your reply. I don't think it's the (Eylea) per say, I think it's just me. I have a lot of medication allergies. I just don't know. Same reaction when they used Avastin. I would say the pain was worse with Eylea though. Most people do not have this reaction I might add. Today my eye is very red and very tender and a little painful when I bllink. But compared to last night or I should say the day as the injection was given at about 10 am yesterday morning, so the intense pain lasted for up to six/seven hours. Yours Truly, Sharon Hume
1. Brown Eyed Girl Moderator
 <inline-mention username="Sharon Hume" user-id="4554906"/> thanks for reporting back to us. It's unfortunate that the pain was worse with Eylea. It must be difficult when you have a lot of medication allergies. I hope at least that this drug keeps your amd under control as well as Avastin, and maybe even better. Some people say they wear a patch for a while after their injection. This might be another suggestion to mention to your doctor, especially as your eye hurts when you blink. I hope by now you are feeling much better. Warm wishes, Wendy, Patient Leader.
Sharon Hume Member
As I said earlier, Eylea was same if not worse that Avastin. Today, after the pain subsided, I feel depleted in energy and still have the grainy feeling under lid, which I can endure that. The pain I suffer is not under lid of eye, it is behind the eye and then radiates to entire head and sinuses. Thanks Again, Sharon Hume
1. Brown Eyed Girl Moderator
 <inline-mention username="Sharon Hume" user-id="4554906"/> I hope that if any other community member has experienced the type of pain which is behind the eye, and radiates around the head, they will chime in here with their experiences. So sorry, once again, that you are suffering this way. Warm regards, Wendy, Patient Leader.

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