Macular Degeneration In America: What's That?
Living with macular degeneration can be scary, and what can make it worse is the lack of information and research available for patients and their loved ones. Many people quickly jump online to research the ins and outs of macular degeneration but have trouble finding reliable information. Even more difficult can be finding someone who can relate to all the challenges that come along with macular degeneration.
What's the In America survey?
The Macular Degeneration In America survey is an annual survey on MacularDegeneration.net that seeks to close some of these gaps.
What will the survey ask me?
The survey will ask about diagnosis, symptoms, symptom management, quality of life and relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information.
Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You will resume where you left off.
Why should I take the survey?
Each person that takes the survey contributes to a better understanding of macular degeneration and can help others who are going through it feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey with macular degeneration is, as well as the differences that make each journey unique.
What happens after I take the survey?
After the survey closes each year, the Editorial Team at MacularDegeneration.net takes your responses and creates an infographic filled with information about life with macular degeneration. But that’s not all – over the year, we publish articles based on learnings from the survey. Each article published, using responses from the survey, contributes to the information available to those affected by macular degeneration and helps them connect with those who have walked the same path.
How do we use the In America survey data?
Survey responses help us and our partners better understand the macular degeneration community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become property of Health Union, LLC.
See last year's results here!
2nd Annual Macular Degeneration In America
One voice may seem like it won’t make a difference, but each voice can change how others perceive life with macular degeneration and bring comfort to someone coping with his or her diagnosis. We have officially closed our 2nd Annual Macular Degeneration In America survey so stay tuned for the results!
Still have questions? Comment below, or email us at firstname.lastname@example.org for more information.
Does macular degeneration affect your mental health?