Focusing on What I Can See

I have been living with dry macular degeneration for 10 years now. Not too big a deal until I reached the intermediate stage a few years ago.

All the subtle changes in vision seemed to worsen all at once. I accepted that I was slowly losing my vision. At this point, I began saying to friends and family, "I can’t see." Always a positive person, I now was fatalistic in regard to impending blindness.

Having to give up my hobbies

Always a needlework enthusiast, one by one I gave up my hobbies. First to go was crochet, followed by machine and hand sewing. I just simply could not see well enough to enjoy my hobbies.

I didn’t look very hard for aids to help me continue my crafts. I couldn't see clearly, so I began to think of myself as someone going blind.

New challenges with driving

By the time I entered the intermediate stage, I cut way back on my driving. I have double vision that is most noticeable when I drive. I see 2 sets of headlights, and cars appear misshapen. While strange in appearance, they do not affect my driving ability. My biggest challenges are reading road signs or passing a car on our 2-lane highways.

Fearing a loss of independence

After my diagnosis of geographic atrophy last July, I really began to think about life with severe vision loss. I feared my loss of independence if I can no longer drive. There are so many activities of daily life that I struggle with. I can’t see to read recipes, read the TV menu, or use my phone for anything other than a call.

Seeing a low vision specialist

I began treatment with Izervay in December. After expressing my concerns to my doctor, he referred me to a low vision specialist.

My visit to the low vision specialist was eye-opening. I learned about the many aids and devices that can help me see things more clearly. I left that appointment with a more positive attitude.

Focusing on what I can see and do

With the right tools, I feel more confident about my future. With the right magnifying glasses I can read a menu, pay bills, or try out a new recipe. Instead of focusing on what I can’t see or do, I now realize I can still see well enough to live independently.

I was surprised when my optometrist told me I was still legal in my state to drive. She did recommend I avoid nighttime driving. After getting lost at night, I had already reached that conclusion.

With GA, progression is likely. After considerable research, I have decided to buy bioptic glasses. I hope to get fitted with the bioptic glasses to aid me in driving in April. They will also enable me to read the TV menu and recognize faces more quickly.

Feeling more positive about the future

These days are much more positive for me. I no longer lament my failing eyesight. I can still see. I can see and enjoy a sunrise or sunset. I can enjoy hobbies if I am willing to try new aids. I can drive for the foreseeable future. And, with the rise of artificial intelligence (AI) technology, I can see new possibilities to help me and others live well, even if our vision worsens.