alt=a woman stares skeptically at a computer screen. Images of medication, fake cures, and snake oil leap out at her.

Warning: The Fear of Losing Your Sight Makes You Vulnerable

This is not to scare or dissuade those with macular degeneration (MD) from learning more about MD or finding new treatment options however, there are a number of questionable posts lately on social media claiming they can vastly improve or even reverse dry and wet macular degeneration. This is very concerning for a number of reasons.

Questionable posts on social media

Do you ever wonder why your Retina Specialist, along with other specialists in the field, are unaware there’s a cure for MD? Why hasn’t your personal doctor shared this astonishing news with you? There may be a very good reason - it may not be true!

If you haven’t questioned these claims already, maybe it’s time to take a closer look. It’s very concerning that a number of people I have talked with are paying large sums of money - over $500 initially followed by high monthly, ongoing payments - to “cure” or manage their MD. I was told there is no cure for dry MD and limited options exist for wet. These claims for a cure are highly suspicious and a reason for concern and caution.

Understandably, it’s easy to fall prey to false claims of reversing or curing MD when you fear the loss of sight that this progressive disease often claims. We are vulnerable to predators who claim to have a cure. However, the “cure” is usually false hope.

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How can you tell the difference between what’s true and what isn’t? There are questions you can ask to eliminate the possibility of a costly scam.

5 Questions to ask yourself

1. Does it sound too good to be true?

    What your mother told you is correct! Whenever something sounds too good to be true, it usually is! Trust your instincts and ask more questions. It’s your right - It’s your money - It’s your responsibility to yourself!

2. Who do you know personally who has used the product or service?

    Don’t believe the hype or testimonials you read on social media. They could be anyone, even paid actors. If you do know someone personally, how have they personally been helped?

3. What does your retina specialist think of the product/service

    Without exception, always share your plans with your doctor to see what they know about the product or service. Surely your professional would know of any medical breakthroughs and can advise you.

4. How will purchasing this product or service help you personally?

    Every case is unique and your personal history determines whether or not this specific product/service would benefit you. If they say “it helps everyone,” run as fast as you can in the other direction!

5. Is the site or doctor a credible, known resource for macular degeneration?

    Who is actually operating the site? What makes them an expert?  Are they a reputable professional or spokesperson? There are many “experts” on social media. Check them out!

What about the placebo effect?

There are cases when physical conditions have vastly improved when patients believe strongly in the treatment, regardless of whether or not it was beneficial to others. Of course, in the end, each person needs to decide for themselves. Whatever comforts and reassures you may be worth the price. Only you can determine that for yourself, to quote Hamlet - “To thine own self be true.”

Is it worth the cost? Is it worth trying?

The different cures and ways to monitor your MD condition can be very expensive and may not be covered by insurance. Often it costs several hundred dollars for an assessment fee PLUS a monthly fee for a special blend of vitamins or service. It may be worth it had vision actually improved. However, those I have known, that was not the case, yet they continue to stay on the program with hope, in time, they will show some improvement. To start or stop a program is a very tough decision to make - We are here to support you at maculardegeneration.net!

Before buying: PAUSE - Proceed with Caution - Consider the 5 preliminary questions above!

Editor's Note: As of August 2023, 2 drugs known as complement inhibitors — Syfovre® and Izervay™ — have been approved by the US Food and Drug Administration (FDA) to treat the advanced stage of dry age-related macular degeneration, or geographic atrophy (GA).

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The MacularDegeneration.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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