An Interview with My Wife
This will be an experiment of sorts, I am going to interview my wife and see what she thinks about my AMD disease.
Do you think it’s possible I will go blind from AMD?
My Wife: No, not in both eyes. Because the injections for your wet eye are working.
Me: Only central vision should be affected... I will always have peripheral vision. Also, it is a slow mover. Being 72, I may be visually functional for the rest of my life span.
What steps should I take to protect the vision I still have?
My Wife: Continue with treatment. Use sunglasses. Do you spend too many hours on electronics?
Me: I will continue to not smoke, smoking is a big factor in preserving the vision I still have. I will attempt to reduce BMI (body mass index). Through exercise and diet, I will attempt to have a normal weight and muscle tone. A Mediterranean Diet is recommended. It is a diet rich in dark greens, colored vegetables, and oily fish like salmon.
How has my AMD disease affected you?
My Wife: You need more help reading fine print and details. You can’t read the menu in a dark restaurant. (When we used to go to a restaurant, that is! Darn COVID!) Fixing things, like small screws and fine work. You don’t like to drive at night, so I have to.
Me: I know, all the things you said are true. My night vision is poor, even when I take the dog out at night, it’s difficult. Recently, I tried to search the night sky for the Perseids meteor shower, that was a big dud. Also, when I tried to tighten the tiny screws on my eyeglasses, that didn’t work out at all.
What would you tell someone who’s loved one was just diagnosed with AMD?
My Wife: To read and learn as much as you can about AMD. When Your loved one is first diagnosed, try to be understanding and compassionate. If your loved one feels panicked and fearful for the future, listen to them, reinforce to them they should get all the information they can regarding the disease before assuming a timeline and outcome.
Me: Exactly! Well said! I remember back 9 years ago when I simply went to my optometrist for some new glasses and this wild ride began. The optometrist saw some shadows in my macula and referred me to a retinal specialist. The eye doc discovered I had wet in my right eye and early dry in my left eye.
What has happened in the 9 years since my AMD was detected:
Well, 9 years ago I had pretty normal corrected vision, I think it was 20/20 in the dry eye and 20/30 in the wet eye.
I am now 72 years old and my early dry eye has changed to the beginnings of Geographic Atrophy and my corrected vision vacillates between 20/70 to 20/100. Amazingly, my wet eye usually tests 20/30, the same vision I had 9 years ago!
How has my life changed since having AMD these last 9 years?
- I don’t drive at night.
- All my reading is now done on devices, where I can alter the font, size and contrast. I am still a voracious reader.
- My wife has to read the program descriptions on TV, unless I get out of my chair and move closer to the TV.
Everything considered (after 70+ injections), is I am still happy and fulfilled with my life in retirement. I would like to leave those newly diagnosed with hope. I sincerely hope your future is bright and want to tell you that you are not suddenly going to go blind. There are many ongoing clinical trials in Phase 2 and Phase 3 for both wet and dry AMD. It is not too far fetched to dream of a cure or treatment that will positively enhance our outcome.
I wish you all well.
Are you aware of assistive technology for AMD?